Watson Alan R
Children's Renal and Urology Unit, Nottingham Children's Hospital, Queen's Medical Centre, Derby Road, Nottingham, NG7 2UH, UK,
Pediatr Nephrol. 2014 Jul;29(7):1169-74. doi: 10.1007/s00467-013-2582-9. Epub 2013 Aug 21.
Chronic kidney disease (CKD) and the need for renal replacement therapy (RRT) can place a great strain on the child and family. As well as the medical and nutritional prescription, each child and family requires an individual psychosocial prescription that requires input from multiprofessional team members. The information needs of each child and family need to be constantly evaluated as well as the choice of therapy in relation to social, psychological and economic factors. Many tertiary units lack adequate "time" to deliver such assessments and coordinate the support and respite care for those on long-term dialysis, especially when significant numbers of children are now accepted onto RRT programmes with co-morbidities. National and international standards are needed for the staffing of comprehensive tertiary paediatric renal units as well as studies evaluating supportive care to families.
慢性肾脏病(CKD)以及对肾脏替代治疗(RRT)的需求会给儿童及其家庭带来巨大压力。除了医疗和营养处方外,每个儿童及其家庭都需要个性化的社会心理处方,这需要多专业团队成员的参与。每个儿童及其家庭的信息需求需要不断评估,同时还需要根据社会、心理和经济因素来选择治疗方法。许多三级医疗单位缺乏足够的“时间”来进行此类评估,也无法为长期透析患者协调支持和临时护理,尤其是当大量患有合并症的儿童现在被纳入RRT项目时。全面的三级儿科肾脏单位的人员配备需要国家和国际标准,同时也需要开展评估对家庭支持性护理的研究。