European Cancer Patient Coalition, Brussels, Belgium.
Mol Oncol. 2019 Mar;13(3):653-666. doi: 10.1002/1878-0261.12448. Epub 2019 Feb 6.
There is an urgent need for solutions to the economic and social inequalities in cancer care that still exist in many European countries. Patient preferences, 'big data', mobile digital technology and molecular and genomic profiling are among the innovative research topics that connect cancer patients to comprehensive cancer centres, and link translational research to cancer diagnosis, treatment and care. The question is whether Europe can deliver the complex infrastructure needed for universal coverage and equitable access to cancer care. The European Cancer Patient Coalition (ECPC), the leading 'umbrella' cancer patient organisation in Europe, has a central role in bringing the unmet needs of patients with cancer to the forefront of cancer policy, care and research. The ECPC is a respected and reliable partner in the oncology community and has effectively collaborated with institutional stakeholders and organisations, as well as with the European Commission, on cancer research projects and in the development of tools to advance health care and cancer policies at the European and national level. The ECPC believes that innovation cannot emerge and grow without patient involvement and is fully committed to increasing patient education and contribution in cancer research through its active participation in various European cancer research programmes and educational resources. The ECPC is expected to play a major role in the mission on cancer, given its previous achievements in policy and research to help overcome the inequalities in cancer prevention, treatment, rehabilitation and survivorship care. The mission on cancer will be facilitated by active collaboration between patient organisations and scientists, clinicians, politicians and industry, with the aim of identifying important research questions regarding quality of life and social issues for cancer patients of all ages.
在许多欧洲国家，癌症护理的经济和社会不平等仍然存在，迫切需要找到解决方案。患者偏好、“大数据”、移动数字技术和分子与基因组分析等创新研究主题将癌症患者与综合癌症中心联系起来，并将转化研究与癌症诊断、治疗和护理联系起来。问题是欧洲能否提供普及癌症护理和公平获得癌症护理所需的复杂基础设施。欧洲癌症患者联盟（ECPC）是欧洲领先的癌症患者组织“伞状”组织，在将癌症患者的未满足需求置于癌症政策、护理和研究的前沿方面发挥着核心作用。ECPC 在肿瘤学界是一个备受尊重和信赖的合作伙伴，与机构利益攸关方和组织以及欧盟委员会在癌症研究项目和开发工具方面进行了有效合作，以促进欧洲和国家层面的医疗保健和癌症政策。ECPC 认为，如果没有患者的参与，创新就不可能出现和发展，因此它完全致力于通过积极参与各种欧洲癌症研究计划和教育资源，提高患者在癌症研究中的教育和贡献。鉴于 ECPC 在政策和研究方面为帮助克服癌症预防、治疗、康复和生存护理方面的不平等所取得的先前成就，预计它将在癌症使命中发挥重要作用。癌症使命将通过患者组织与科学家、临床医生、政治家和行业之间的积极合作来推动，目的是确定与所有年龄段癌症患者的生活质量和社会问题相关的重要研究问题。
