Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada.
Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada.
Disabil Rehabil. 2020 May;42(9):1220-1226. doi: 10.1080/09638288.2018.1519042. Epub 2019 Jan 22.
To explore perceptions of people with neurological conditions and their caregivers of the health benefits of a group, task-oriented community-based exercise programme incorporating a healthcare-recreation partnership. Descriptive qualitative study. Individuals with balance and mobility deficits from a neurological condition, and their caregivers, were interviewed on completion of a group, task-oriented community-based exercise programme incorporating a healthcare-recreation partnership. A thematic analysis was performed. Nine people post-stroke, and four people with multiple sclerosis (MS) ( = 13; 54% male) and 12 caregivers (83% spouses) participated. Two themes emerged. One theme indicated that the programme fosters diverse, interrelated health benefits. Participants described experiences of improved balance, strength, and confidence that translated to improved everyday functioning and social participation. Benefits were reinforced through repeated programme registration. A second theme indicated that caregivers experience challenges and diverse benefits related to the programme. Transportation and programme cost were primary challenges. Caregivers described emotional health benefits from assisting participants during classes and observing participants improvement over time. Group, task-oriented community-based exercise programmes incorporating a healthcare-recreation partnership may yield health benefits for exercise participants and caregivers. Results can guide programme evaluation, the nature and timing of education about such programmes, and efforts to address cost and transportation issues.Implications of rehabilitationStroke and multiple sclerosis commonly cause balance and mobility limitations that can result in physical inactivity and further deterioration in health.Group, task-oriented community-based exercise programmes in which rehabilitation professionals train and support fitness instructors to deliver the exercise programme in community centres may increase access to exercise participation for this group.Study results suggest by improving balance and mobility, these programmes help increase independence in activities of daily living and social and leisure participation, while improving caregiver mental health and decreasing the need for caregiver assistance.Rehabilitation professionals can use findings to inform patient education, and support programme implementation and referral.
探索患有神经疾病的患者及其照顾者对团体、以任务为导向的基于社区的锻炼计划的健康益处的看法,该计划结合了医疗保健-娱乐伙伴关系。描述性定性研究。完成团体、以任务为导向的基于社区的锻炼计划后,对患有神经疾病的平衡和移动障碍的个体及其照顾者进行了访谈,该计划结合了医疗保健-娱乐伙伴关系。进行了主题分析。共有 9 名中风后患者和 4 名多发性硬化症(MS)患者( = 13;54%为男性)和 12 名照顾者(83%为配偶)参与。出现了两个主题。一个主题表明该计划促进了多样化的、相互关联的健康益处。参与者描述了平衡、力量和信心的提高,这转化为日常生活功能和社交参与的改善。通过反复注册计划来加强益处。第二个主题表明照顾者在计划中面临挑战和各种益处。交通和计划成本是主要挑战。照顾者描述了在课程中协助参与者和观察参与者随着时间的推移而进步所带来的情绪健康益处。团体、以任务为导向的基于社区的锻炼计划结合医疗保健-娱乐伙伴关系可能会为锻炼参与者和照顾者带来健康益处。结果可以指导计划评估、此类计划的教育性质和时间安排,以及解决成本和交通问题的努力。康复的意义中风和多发性硬化症通常会导致平衡和移动障碍,从而导致身体活动减少和健康进一步恶化。在社区中心,由康复专业人员培训和支持健身指导员提供锻炼计划的以团体、以任务为导向的基于社区的锻炼计划可能会增加该群体参与锻炼的机会。研究结果表明,通过改善平衡和移动能力,这些计划有助于提高日常生活活动的独立性以及社交和休闲参与度,同时改善照顾者的心理健康并减少对照顾者的帮助需求。康复专业人员可以利用这些发现为患者提供教育,并支持计划的实施和转介。