Department of Geriatrics/Department of Behavioural Sciences and Social Medicine, Florida State University College of Medicine, Tallahassee, FL, USA.
Department of Sociology, University of Tampa, Tampa, FL, USA.
Sociol Health Illn. 2019 May;41(4):723-739. doi: 10.1111/1467-9566.12849. Epub 2019 Jan 22.
In this collaborative autoethnography, we examine the processes whereby people may reframe their interpretations and understandings of health and illness as a result of new diagnostic information. In so doing, we utilise the first author's experience receiving a conclusive diagnosis of cystic fibrosis after years of misdiagnosis to outline some ways changes in diagnosis facilitate shifts in illness management, the nature of health and illness and the experience of the self in relation to health and medicine. Furthermore, we discuss the ways this case reveals the importance of examining and comparing the social construction and transformation of health and illness within and between different individual and collective lived experiences over time. In closing, we draw out theoretical and empirical implications for understanding transformations in the nature of health and illness over the life course as well as future directions for research investigating shifts in illness management and understanding over time (A virtual abstract of this paper is available to view at: https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA).
在这项合作的自传体民族志研究中，我们研究了人们由于新的诊断信息而重新解释和理解健康和疾病的过程。在这样做的过程中，我们利用第一作者在多年误诊后被确诊为囊性纤维化的经历，概述了一些诊断变化如何促进疾病管理、健康和疾病的本质以及与健康和医学相关的自我体验的转变。此外，我们讨论了这种情况如何揭示了检查和比较随着时间的推移在不同个体和集体生活经历中健康和疾病的社会建构和转变的重要性。最后，我们得出了理解生命过程中健康和疾病本质转变的理论和经验意义，以及研究随着时间推移疾病管理和理解转变的未来方向（本文的虚拟摘要可在以下网址查看：https://www.youtube.com/channel/UC_979cmCmR9rLrKuD7z0ycA）。
