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终末期肾病难民的肾脏替代治疗:肾脏病学界的一项国际调查

Renal replacement therapy for refugees with end-stage kidney disease: an international survey of the nephrological community.

作者信息

Van Biesen Wim, Vanholder Raymond, Vanderhaegen Bert, Lameire Norbert, Wanner Christoph, Wiecek Andrzej, Sever Mehmet S, Feehally Johan, Kazancioglu Remuyza, Rondeau Eric, Levin Adeera, Harris David

机构信息

Renal Division, Ghent University Hospital, Ghent, Belgium.

Renal Disaster Relief Task Force (RDRTF), International Society of Nephrology, Ghent, Belgium.

出版信息

Kidney Int Suppl (2011). 2016 Dec;6(2):35-41. doi: 10.1016/j.kisu.2016.09.001. Epub 2016 Nov 21.

Abstract

Provision of health care for refugees poses many political, economical, and ethical questions. Data on the prevalence and management of refugees with end-stage kidney disease (ESKD) are scant. Nevertheless, the impact of refugees in need for renal replacement can be as high for the patient as for the receiving centers. The International Society of Nephrology and the European Renal Association/European Dialysis and Transplant Association surveyed their membership through Survey Monkey questionnaires to obtain data on epidemiology and management practices of refugees with ESKD. Refugees represent 1.5% of the dialysis population, but their geographic distribution is very skewed: ±60% of centers treat 0, 15% treat 1, and a limited number of centers treat >20 refugees. Knowledge on financial and legal management of these patients is low. There is a lack of a structured approach by the government. Most respondents stated we have a moral duty to treat refugee patients with ESKD. Cultural rather than linguistic differences were perceived as a barrier for optimal care. Provision of dialysis for refugees with ESKD seems sustainable and logistically feasible, as they are only 1.5% of the regular dialysis population, but the skewed distribution potentially threatens optimal care. There is a need for education on financial and legal aspects of management of refugees with ESKD. Clear guidance from governing bodies should avoid unacceptable ethical dilemmas for the individual physician. Such strategies should balance access to care for all with equity and solidarity without jeopardizing the health care of the local population.

摘要

为难民提供医疗保健引发了许多政治、经济和伦理问题。关于终末期肾病(ESKD)难民的患病率和管理的数据匮乏。然而,需要肾脏替代治疗的难民对患者和接收中心的影响可能同样巨大。国际肾脏病学会和欧洲肾脏协会/欧洲透析与移植协会通过Survey Monkey问卷对其成员进行了调查,以获取有关ESKD难民的流行病学和管理实践的数据。难民占透析人群的1.5%,但其地理分布非常不均衡:约60%的中心没有治疗难民,15%的中心治疗1名难民,只有少数中心治疗超过20名难民。对这些患者的财务和法律管理方面的了解较少。政府缺乏结构化的方法。大多数受访者表示,我们有道德义务治疗患有ESKD的难民患者。文化差异而非语言差异被视为提供最佳护理的障碍。为患有ESKD的难民提供透析似乎是可持续的,并且在后勤上是可行的,因为他们仅占常规透析人群的1.5%,但分布不均衡可能会威胁到最佳护理。需要对ESKD难民管理的财务和法律方面进行教育。管理机构的明确指导应避免个体医生面临不可接受的伦理困境。此类策略应在确保所有人都能获得医疗服务的同时,兼顾公平与团结,且不危及当地居民的医疗保健。

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