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肿瘤患者使用门户网站的综述。

A Review of Web Portal Use by Oncology Patients.

作者信息

Coughlin Steven S, Caplan Lee, Young Lufei

机构信息

Department of Population Health Sciences, Medical College of Georgia, Augusta University, Augusta, GA.

Research Service, Charlie Norwood Veterans Affairs Medical Center, Augusta, GA.

出版信息

J Cancer Treatment Diagn. 2018;2(6). doi: 10.29245/2578-2967/2018/6.1154.

Abstract

BACKGROUND

Patient portals and other Internet-based technologies have been increasingly used to improve cancer care coordination. Patient portals may introduce special considerations in oncology populations where longitudinal outpatient care is often more intensive than in most other specialties.

METHODS

This article, which is based upon bibliographic searches in PubMed, reviews the literature on web portal use by cancer patients. Articles published in English from 2000 to August 2018 were identified using the following MeSH search terms and Boolean algebra commands: web portal AND cancer. Information obtained from bibliographic searches (title and topic of article, information in abstract, and keywords) was used to determine whether to retain each article identified in this way.

RESULTS

A total of 263 article citations were identified in the bibliographic searches. Of these, 10 met the eligibility criteria. A variety of study designs were used including focus groups, usability testing, in-person interviews, questionnaire surveys, retrospective cohort, and non-randomized trial. Cancer patients had reached modest levels of portal use. Increased portal use has been associated with younger age, white race, and higher socioeconomic status. Most cancer patients used portals to look up testing results and provide notes, but had difficulty in interpreting the results appropriately.

CONCLUSIONS

Our study adds to the growing evidence that patient portals play a significant role in promoting self-management in cancer survivors. Additional studies are needed to determine factors influencing portal use, so effective interventions can be developed to enhance portal use.

摘要

背景

患者门户网站及其他基于互联网的技术已越来越多地用于改善癌症护理协调。在肿瘤患者群体中,纵向门诊护理往往比大多数其他专科更为密集,患者门户网站可能会带来一些特殊考量。

方法

本文基于对PubMed的文献检索,回顾了有关癌症患者使用门户网站的文献。使用以下医学主题词(MeSH)检索词和布尔代数命令,识别2000年至2018年8月期间以英文发表的文章:门户网站与癌症。从文献检索中获得的信息(文章标题和主题、摘要中的信息以及关键词)用于确定是否保留以这种方式识别的每篇文章。

结果

在文献检索中总共识别出263条文章引用。其中,10篇符合纳入标准。使用了多种研究设计,包括焦点小组、可用性测试、面对面访谈、问卷调查、回顾性队列研究和非随机试验。癌症患者的门户网站使用达到了适度水平。门户网站使用的增加与年龄较小、白人种族和较高的社会经济地位相关。大多数癌症患者使用门户网站查找检测结果并提供备注,但在正确解读结果方面存在困难。

结论

我们的研究进一步证明了患者门户网站在促进癌症幸存者自我管理方面发挥着重要作用。需要进一步研究以确定影响门户网站使用的因素,从而制定有效的干预措施来提高门户网站的使用。

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