Groen Wim G, Kuijpers Wilma, Oldenburg Hester Sa, Wouters Michel Wjm, Aaronson Neil K, van Harten Wim H
Division of Psychosocial Research and Epidemiology, The Netherlands Cancer Institute, Amsterdam, Netherlands.
Division of Surgical Oncology, The Netherlands Cancer Institute, Amsterdam, Netherlands.
JMIR Cancer. 2017 Aug 8;3(2):e10. doi: 10.2196/cancer.7443.
MyAVL is an interactive portal for cancer patients that aims to support lung cancer patients.
We aimed to evaluate the feasibility and usability of the patient portal and generate preliminary evidence on its impact.
Lung cancer patients currently or recently treated with curative intent could use MyAVL noncommittally for 4 months. Feasibility, usability, and preliminary impact (ie, patient activation, quality of life, and physical activity) were studied by means of questionnaires, a focus group, and analysis of user log data.
We included 37 of 123 eligible patients (mean age 59.6 years). The majority of responses (82%) were positive about using MyAVL, 69% saw it as a valuable addition to care, and 56% perceived increased control over their health. No positive effects could be substantiated on the impact measures.
MyAVL appears to be a feasible and user-friendly, multifunctional eHealth program for a selected group of lung cancer patients. However, it needs further improvements to positively impact patient outcomes.
MyAVL是一个面向癌症患者的交互式门户网站，旨在为肺癌患者提供支持。
我们旨在评估该患者门户网站的可行性和易用性，并就其影响生成初步证据。
目前正在接受或最近接受根治性治疗的肺癌患者可以无约束地使用MyAVL 4个月。通过问卷调查、焦点小组和用户日志数据分析来研究可行性、易用性和初步影响（即患者活跃度、生活质量和身体活动）。
123名符合条件的患者中有37名被纳入研究（平均年龄59.6岁）。大多数反馈（82%）对使用MyAVL持积极态度，69%认为它是护理的重要补充，56%觉得对自身健康的掌控感增强。在影响指标方面未证实有积极效果。
MyAVL似乎是一个针对特定肺癌患者群体的可行且用户友好的多功能电子健康项目。然而，它需要进一步改进以对患者结局产生积极影响。
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