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虚拟候诊室:肿瘤护理中等待的新叙事

Virtual Waiting Room: The New Narrative of Waiting in Oncology Care.

作者信息

Světlák Miroslav

机构信息

Department of Medical Psychology and Psychosomatics, Faculty of Medicine, Masaryk University, Brno, Czechia.

Department of Comprehensive Cancer Care, Masaryk Memorial Cancer Institute, Brno, Czechia.

出版信息

J Cancer Educ. 2025 Apr;40(2):303-312. doi: 10.1007/s13187-024-02496-9. Epub 2024 Sep 2.

Abstract

This conceptual study introduces the "virtual waiting room," an innovative, interactive, web-based platform designed to enhance the waiting experience in oncology by providing personalized, educational, and supportive content. Central to our study is the implementation of the circular entry model, which allows for non-linear navigation of health information, empowering patients to access content based on their immediate needs and interests. This approach respects the individual journeys of patients, acknowledging the diverse pathways through which they seek understanding and manage their health. The virtual waiting room is designed not only to support patients but also to facilitate stronger communication and shared understanding between patients, caregivers, and families. By providing a shared digital space, the platform enables caregivers and family members to access the same information and resources, thereby promoting transparency and collective knowledge. This shared access is crucial in managing the emotional complexities of oncology care, where effective communication can significantly impact treatment outcomes and patient well-being. Furthermore, the study explores how the circular entry model within the virtual waiting room can enhance patient autonomy and engagement by offering customized interactions based on user feedback and preferences. This personalized approach aims to reduce anxiety, improve health literacy, and prepare patients more effectively for clinical interactions. By transforming passive waiting into active engagement, the virtual waiting room turns waiting time into a meaningful, informative period that supports both the psychological and informational needs of patients and their support networks.

摘要

这项概念性研究引入了“虚拟候诊室”,这是一个创新的、交互式的基于网络的平台,旨在通过提供个性化、教育性和支持性内容来改善肿瘤患者的候诊体验。我们研究的核心是实施循环进入模式,该模式允许对健康信息进行非线性导航,使患者能够根据自己当前的需求和兴趣获取内容。这种方法尊重患者的个体历程,承认他们寻求理解和管理自身健康的多样途径。虚拟候诊室的设计不仅是为了支持患者,还为了促进患者、护理人员和家属之间更有效的沟通和共同理解。通过提供一个共享的数字空间,该平台使护理人员和家庭成员能够获取相同的信息和资源,从而提高透明度和集体知识水平。这种共享访问对于应对肿瘤护理中的情感复杂性至关重要,因为有效的沟通会显著影响治疗效果和患者福祉。此外,该研究探讨了虚拟候诊室内的循环进入模式如何通过根据用户反馈和偏好提供定制化互动来增强患者的自主性和参与度。这种个性化方法旨在减轻焦虑、提高健康素养,并使患者更有效地为临床互动做好准备。通过将被动等待转变为积极参与,虚拟候诊室将等待时间变成一个有意义且信息丰富的时间段,满足患者及其支持网络的心理和信息需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/774b/11978718/4191a05dbda2/13187_2024_2496_Fig1_HTML.jpg

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