Oremus Mark, Sharafoddini Anis, Morgano Gian Paolo, Jin Xuejing, Xie Feng
School of Public Health and Health Systems, University of Waterloo, Waterloo, ON, Canada.
Department of Health Research Methods, Evidence, and Impact, McMaster University, Hamilton, ON, Canada.
JMIR Form Res. 2018 Jan 23;2(1):e3. doi: 10.2196/formative.8202.
The time trade-off (TTO) task is a method of eliciting health utility scores, which range from 0 (equivalent to death) to 1 (equivalent to perfect health). These scores numerically represent a person's health-related quality of life. Software apps exist to administer the TTO task; however, most of these apps are poorly documented and unavailable to researchers.
To fill the void, we developed an online app to administer the TTO task for a research study that is examining general public proxy health-related quality of life estimates for persons with Alzheimer's disease. This manuscript describes the development and pretest of the app.
We used Research Electronic Data Capture (REDCap) to build the TTO app. The app's modular structure and REDCap's object-oriented environment facilitated development. After the TTO app was built, we recruited a purposive sample of 11 members of the general public to pretest its functionality and ease of use.
Feedback from the pretest group was positive. Minor modifications included clarity enhancements, such as rearranging some paragraph text into bullet points, labeling the app to delineate different question sections, and revising or deleting text. We also added a research question to enable the identification of respondents who know someone with Alzheimer's disease.
We developed an online app to administer the TTO task. Other researchers may access and customize the app for their own research purposes.
时间权衡(TTO)任务是一种获取健康效用分数的方法,分数范围从0(等同于死亡)到1(等同于完美健康)。这些分数从数值上代表了一个人的健康相关生活质量。存在一些软件应用程序来执行TTO任务;然而,这些应用程序大多记录不完善,研究人员无法获取。
为填补这一空白,我们开发了一款在线应用程序,用于一项研究中的TTO任务,该研究正在调查公众对阿尔茨海默病患者健康相关生活质量的代理估计。本文描述了该应用程序的开发和预测试。
我们使用研究电子数据采集(REDCap)来构建TTO应用程序。该应用程序的模块化结构和REDCap的面向对象环境促进了开发。在构建TTO应用程序后,我们招募了11名公众作为有目的的样本,对其功能和易用性进行预测试。
预测试组的反馈是积极的。微小的修改包括增强清晰度,例如将一些段落文本重新排列为项目符号、给应用程序添加标签以划分不同的问题部分,以及修改或删除文本。我们还添加了一个研究问题,以便识别认识阿尔茨海默病患者的受访者。
我们开发了一款在线应用程序来执行TTO任务。其他研究人员可以访问并根据自己的研究目的定制该应用程序。