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评估乳糜泻相关知识工具的系统评价

A Systematic Review of Tools to Assess Coeliac Disease-Related Knowledge.

作者信息

Hall Sophie, Kenrick Kristin, Day Andrew S, Vernon-Roberts Angharad

机构信息

Department of Paediatrics, University of Otago Christchurch, 4 Oxford Terrace, Christchurch 8011, New Zealand.

Department of Paediatrics, Christchurch Hospital, 2 Riccarton Ave, Christchurch 8011, New Zealand.

出版信息

J Clin Med. 2024 Jul 11;13(14):4053. doi: 10.3390/jcm13144053.

Abstract

: Coeliac disease (CD) is an immune-mediated disorder, with dietary exclusion of gluten the only current treatment. A good knowledge of CD and gluten-free diet (GFD) is essential for those with CD to support effective self-management. Knowledge assessment with a validated tool helps evaluate understanding and knowledge gaps to better tailor educational resources. This study's aim was to perform a systematic review to identify validated CD knowledge assessment tools. : PRISMA guidelines were followed, and searches were carried out in five literature databases. Papers were reviewed for tool development and testing process and assessed against pre-defined criteria for feasibility, validity, and reliability. : Twenty-five papers were included in the final analysis. Studies were from 16 countries, with a range of target populations, study designs, and development processes. Eleven reported pilot testing, and five assessed readability. Content validity was assessed in ten papers and formal content validity testing in one. Many tools contained items affecting generalisability outside the region developed. : For a CD knowledge assessment tool to be suitable for use, it needs to be well designed, tested, and generalisable. No papers identified satisfied all requirements, thus highlighting a need to develop an appropriate tool.

摘要

乳糜泻(CD)是一种免疫介导的疾病,目前唯一的治疗方法是在饮食中排除麸质。对于患有CD的人来说,深入了解CD和无麸质饮食(GFD)对于支持有效的自我管理至关重要。使用经过验证的工具进行知识评估有助于评估理解程度和知识差距,以便更好地定制教育资源。本研究的目的是进行系统评价,以确定经过验证的CD知识评估工具。:遵循PRISMA指南,并在五个文献数据库中进行检索。对论文进行了工具开发和测试过程的审查,并根据预定义的可行性、有效性和可靠性标准进行评估。:最终分析纳入了25篇论文。研究来自16个国家,涉及一系列目标人群、研究设计和开发过程。11篇报告了试点测试,5篇评估了可读性。10篇论文评估了内容效度,1篇进行了正式的内容效度测试。许多工具包含的项目影响了其在开发地区以外的通用性。:要使CD知识评估工具适合使用,它需要设计良好、经过测试且具有通用性。没有一篇论文满足所有要求,因此凸显了开发合适工具的必要性。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/e0d3/11277601/497a794e0897/jcm-13-04053-g001.jpg

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