Department of Medicine, University of Udine, 33100 Udine, Italy.
Associazione Italiana Celiachia (AIC), 16124 Genoa, Italy.
Nutrients. 2024 Jul 31;16(15):2493. doi: 10.3390/nu16152493.
This study aims were (i) to describe Italian celiac patients who agreed to participate in the latest web survey and their attitudes toward the GF diet (compliance, perceived limitations, and worries) and (ii) to compare the answers given by the 2011 and 2022 responders. The self-administered questionnaire was distributed through the Italian Coeliac Association channels (link on social media, websites, and newsletters) to all of the celiac patients willing to participate in 2011 and 2022 (2427 and 3529 responders who answered the same questions, respectively). Descriptive analyses and the Pearson's chi-squared test were performed. The responders were 1 to 84 years old and mainly female. The prevalence of adherent patients in 2022 was 91%, with the highest value (94%) in children (≤10 years old) and adolescents (15-17 years old). Overall, young adults were the most worried group. About a decade after the first survey, we observed a decreasing prevalence of transgression events (-5%) and (at least) occasional temptation (-17%), a decreasing prevalence of health-related and general worries, but an increasing prevalence of social life withdrawal. In conclusion, it is important to periodically monitor celiac patients' compliance and attitudes towards the gluten-free diet. As also highlighted in international guidelines, a reorganization of the diagnosis/follow-up visits, including an expert dietary consultation, is needed.
(i) 描述同意参与最新网络调查的意大利乳糜泻患者及其对 GF 饮食的态度（依从性、感知限制和担忧）；(ii) 比较 2011 年和 2022 年应答者的回答。通过意大利乳糜泻协会的渠道（社交媒体链接、网站和通讯）向所有愿意参加 2011 年和 2022 年调查的乳糜泻患者（分别回答相同问题的 2427 名和 3529 名应答者）分发了自我管理问卷。进行了描述性分析和 Pearson 卡方检验。应答者年龄在 1 至 84 岁之间，主要为女性。2022 年依从性患者的患病率为 91%，儿童（≤10 岁）和青少年（15-17 岁）的患病率最高（94%）。总体而言，年轻成年人是最担忧的群体。在第一次调查大约十年后，我们观察到违规事件的患病率下降（-5%）和（至少）偶尔的诱惑减少（-17%），健康相关和一般担忧的患病率下降，但社会生活退缩的患病率增加。总之，定期监测乳糜泻患者的依从性和对无麸质饮食的态度非常重要。正如国际指南所强调的，需要重新组织诊断/随访，包括专家饮食咨询。
