“我希望我的孩子能对自己的生活感到满意”：父母对自闭症谱系障碍儿童一生的期望。
"I Would Like for My Child to be Happy with His Life": Parental Hopes for Their Children with ASD Across the Lifespan.
机构信息
Department of Audiology and Speech Pathology, University of Tennessee Health Science Center, 578 South Stadium Hall, Knoxville, TN, 37996, USA.
Department of Communication Sciences and Disorders, Elmhurst College, Elmhurst, USA.
出版信息
J Autism Dev Disord. 2019 May;49(5):2049-2068. doi: 10.1007/s10803-019-03882-9.
The purpose of this project was to understand the hopes of parents with children with ASD. Particularly understudied are the hopes parents have for long-term outcomes for their child. A cross-sectional focus group design was used and six focus groups were completed. These groups included parents of (1) preschool aged children who were recently diagnosed, (2) children in early elementary school, (3) children in later elementary school, (4) children in middle school, (5) children in high school, and (6) children who are adults with ASD. Results indicated 77.4% of the data were devoted to hopes for the children's independence, happiness, and skill improvement; increased authentic socially significant relationships; and future employment.
本项目旨在了解自闭症谱系障碍儿童家长的期望。特别缺乏研究的是家长对孩子长期预后的期望。采用了横断面焦点小组设计，并完成了六个焦点小组。这些小组包括（1）最近被诊断出患有学龄前儿童的父母，（2）小学低年级儿童的父母，（3）小学高年级儿童的父母，（4）中学儿童的父母，（5）高中儿童的父母，以及（6）患有自闭症谱系障碍的成年儿童的父母。结果表明，77.4%的数据都集中在孩子独立、幸福和技能提高、更多真实的有意义的社会关系以及未来就业方面。
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