Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada.
Dalla Lana School of Public Health, University of Toronto, Toronto, Canada.
Disabil Rehabil. 2020 Jun;42(11):1569-1577. doi: 10.1080/09638288.2018.1530804. Epub 2019 Jan 28.
Adolescents with disabilities often demonstrate higher sedentary behaviours, lower physical activity levels, poorer quality diets, and higher rates of overweight and obesity than typically developing youth. This study had two objectives: 1) To understand the needs and priorities of adolescents with disabilities, parents, and the healthcare professionals who work with them around healthy lifestyles and weight management; and 2) To explore whether and how a mobile application could address these needs. Multiple perspectives were gathered through separate qualitative focus groups with adolescents with disabilities (12-17 years), parents, and rehabilitation healthcare professionals. Data were analysed using descriptive thematic analysis. Parents ( = 6) and healthcare professionals ( = 9) described the complex needs of adolescents with disabilities around weight management and healthy lifestyles, including balancing differing priorities and a lack of appropriate resources. Adolescents ( = 7) endorsed the potential for technology to enhance their health through empowerment and having a virtual support system. All stakeholder groups endorsed taking a holistic, wellness approach. Adolescents with disabilities have a complex lifestyle and weight management needs, but mobile applications have the potential to provide individualized support. It is critical that anyone developing mobile applications engage a range of stakeholders as co-designers.Implications for rehabilitationAdolescents with disabilities have complex support needs and priorities around weight management and healthy lifestyles.Existing resources do not take into account the wide-ranging abilities of adolescents with disabilities.Mobile applications have the potential to empower adolescents and provide tailored support around healthy lifestyles.Including user input when designing technologies is critical.
残疾青少年的久坐行为往往更高,身体活动水平较低,饮食质量较差,超重和肥胖的比例高于普通青少年。本研究有两个目标:1)了解残疾青少年、家长和与之合作的康复保健专业人员在健康生活方式和体重管理方面的需求和优先事项;2)探讨移动应用程序是否以及如何满足这些需求。通过与残疾青少年(12-17 岁)、家长和康复保健专业人员分别进行的定性焦点小组,从多个角度收集了数据。使用描述性主题分析对数据进行分析。家长( = 6)和保健专业人员( = 9)描述了残疾青少年在体重管理和健康生活方式方面的复杂需求,包括平衡不同的优先事项和缺乏适当的资源。青少年( = 7)认可技术通过赋权和拥有虚拟支持系统来增强他们健康的潜力。所有利益相关者群体都认可采取整体健康方法。残疾青少年的生活方式复杂,体重管理需求多样,但移动应用程序有可能提供个性化的支持。开发移动应用程序的人必须让一系列利益相关者作为共同设计者参与进来,这一点至关重要。
康复的意义
残疾青少年在体重管理和健康生活方式方面有复杂的支持需求和优先事项。
现有的资源没有考虑到残疾青少年广泛的能力。
移动应用程序有可能为青少年提供赋权和量身定制的健康生活方式支持。
在设计技术时纳入用户输入至关重要。