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评估健康差异研究的重要性。

The Importance of Evaluating Health Disparities Research.

机构信息

Bruce A. Dye is with the National Institute of Dental and Craniofacial Research, National Institutes of Health (NIH), Bethesda, MD. Deborah G. Duran, Tilda Farhat, and Nancy Breen are with the National Institute on Minority Health and Health Disparities, NIH, Bethesda. David M. Murray is with the Office of the Director, Office of Disease Prevention, NIH, Bethesda. John W. Creswell is with the University of Michigan Medical School, Ann Arbor. Patrick Richard is with Preventive Medicine and Biostatistics, Uniformed Services University of Health Sciences, Bethesda. Michael M. Engelgau is with the National Heart, Lung, and Blood Institute, NIH, Bethesda. Tilda Farhat and Nancy Breen are also Guest Editors for this supplement issue.

出版信息

Am J Public Health. 2019 Jan;109(S1):S34-S40. doi: 10.2105/AJPH.2018.304808.

Abstract

Health disparity populations are socially disadvantaged, and the multiple levels of discrimination they often experience mean that their characteristics and attributes differ from those of the mainstream. Programs and policies targeted at reducing health disparities or improving minority health must consider these differences. Despite the importance of evaluating health disparities research to produce high-quality data that can guide decision-making, it is not yet a customary practice. Although health disparities evaluations incorporate the same scientific methods as all evaluations, they have unique components such as population characteristics, sociocultural context, and the lack of health disparity common indicators and metrics that must be considered in every phase of the research. This article describes evaluation strategies grouped into 3 components: formative (needs assessments and process), design and methodology (multilevel designs used in real-world settings), and summative (outcomes, impacts, and cost). Each section will describe the standards for each component, discuss the unique health disparity aspects, and provide strategies from the National Institute on Minority Health and Health Disparities Metrics and Measures Visioning Workshop (April 2016) to advance the evaluation of health disparities research.

摘要

健康差异人群在社会上处于不利地位,他们经常经历的多层次歧视意味着他们的特征和属性与主流人群不同。旨在减少健康差异或改善少数民族健康的计划和政策必须考虑到这些差异。尽管评估健康差异研究对于生成可指导决策的高质量数据非常重要,但这还不是一种惯例做法。尽管健康差异评估采用了与所有评估相同的科学方法,但它们具有独特的组成部分,如人口特征、社会文化背景,以及在研究的每个阶段都必须考虑的缺乏健康差异常见指标和度量标准。本文描述了分为 3 个部分的评估策略:形成性(需求评估和过程)、设计和方法(用于真实环境的多层次设计)以及总结性(结果、影响和成本)。每个部分将描述每个组成部分的标准,讨论健康差异的独特方面,并提供来自国家少数民族健康和健康差异指标和衡量标准远景研讨会(2016 年 4 月)的策略,以推进健康差异研究的评估。

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