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照顾患有慢性病的老年人:老年人照顾者的生活体验。

Caring for the seniors with chronic illness: The lived experience of caregivers of older adults.

机构信息

Institute of Neuroscience and Physiology, Sahlgrenska Academy, University of Gothenburg, Sweden.

Department of Nursing Science, College of Health Sciences, Obafemi Awolowo University, Ile-Ife, Nigeria.

出版信息

Arch Gerontol Geriatr. 2019 May-Jun;82:8-14. doi: 10.1016/j.archger.2019.01.013. Epub 2019 Jan 25.

Abstract

BACKGROUND

Caregivers of the elderly with chronic illnesses are exposed to the burden associated with their caregiving activities. This study described the lived experience of caregivers of older adults in Nigeria.

METHODS

A qualitative design guided by interpretive phenomenology informed the design of the research, whereby 15 in-depth interviews were conducted with caregivers of older adults with chronic illnesses. The interview sessions were audiotaped and transcribed verbatim and analysed using constant comparison analysis method.

RESULTS

Fifteen caregivers, from different parts of Osun State, Nigeria, took part in the in-depth interviews. The caregivers were aged between 19 and 70 years, ten were women, five of them had secondary education, seven were self-employed and six were in a spousal relationship. The study uncovered four interrelated themes with explanatory subthemes-commitment to preservation of life (managing challenges associated with daily routine, problem with mobility, bathing and grooming, feeding, and problem with hygiene) (ii) denial (refusal to accept that burden exists), other things suffer (disruption of family process, suffering from poor health and social isolation), (iv) reciprocity of care (pride in caregiving, caregiving as a necessity and not by choice, and law of karma).

CONCLUSION

This study provides insight into the burden of care of older adults with chronic illness. Caregivers' commitment to preserving life makes them provide assistance whose performance even run contrary to their own wellbeing. Intervention programme should be designed to support the caregivers thereby improving their wellbeing.

摘要

背景

照顾患有慢性病的老年人的护理人员会承受与照顾活动相关的负担。本研究描述了尼日利亚老年慢性病患者照顾者的生活体验。

方法

本研究采用解释现象学指导的定性设计,共对 15 名患有慢性病的老年照护者进行了深入访谈。访谈过程进行了录音,并逐字转录,采用恒定性比较分析方法进行分析。

结果

来自尼日利亚奥孙州不同地区的 15 名照护者参加了深入访谈。照护者的年龄在 19 岁至 70 岁之间,其中 10 名是女性,5 人受过中等教育,7 人自雇,6 人处于配偶关系。研究揭示了四个相互关联的主题,并有解释性的副标题:对生命的承诺(应对日常例行事务、行动、洗澡和修饰、喂养以及卫生方面的挑战);否认(拒绝承认存在负担);其他事情也会受苦(家庭过程被打乱、健康状况不佳和社会孤立);关怀的互惠性(对照顾的自豪感、照顾是必要的而不是选择、因果报应)。

结论

本研究深入了解了患有慢性病的老年人的照护负担。照护者对维持生命的承诺使他们提供帮助,而这些帮助的表现甚至违背了他们自己的健康。应该设计干预方案来支持照顾者,从而改善他们的幸福感。

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