Department of Nursing, Institute of Dermatology, Chinese Academy of Medical Sciences and Peking Union Medical College, Nanjing, Jiangsu, China (mainland).
Department of Rheumatology, Affiliated Hospital of Nanjing University of Traditional Chinese Medicine (TCM), Nanjing, Jiangsu, China (mainland).
Med Sci Monit. 2019 Feb 4;25:970-976. doi: 10.12659/MSM.913304.
BACKGROUND Dermatology patients continue to receive improved treatment, but for patients with psoriasis, there have been few studies on ways to improve patient management by improving communication with patients and their dermatologists. This study aimed to investigate the feasibility and efficacy of cloud-based interactive patient and physician management of psoriasis. MATERIAL AND METHODS The cloud-based platform was created by professional software engineers to educate and manage patients with psoriasis in a single hospital, where patients and research staff had a network platform for sharing data. A total of 79 patients with psoriasis were included in this study and were randomly divided into the control group (n=39) and the intervention group (n=40). Patients in the control group were given a psoriasis nursing manual and underwent regular follow-up. Patients in the intervention group were managed using the cloud platform, with the same management as the control group. The Psoriasis Area Severity Index (PASI), the Self-Rating Anxiety Scale (SAS), the Dermatology Life Quality Index (DLQI), and the Symptom Checklist-90-Revised (SCL-90-R) were used. RESULTS Cloud-based interactive patient and physician management resulted in clinical improvement, and reduced the degree of anxiety in patients with psoriasis and improved their physical and mental health. Patients in the intervention group had an improved understanding of psoriasis treatment, resulting in an improved relationship with the medical staff and improved treatment compliance. CONCLUSIONS Cloud-based interactive patient and physician management improved the mental health and quality of life for patients with psoriasis and allowed patients to manage their disease more effectively.
皮肤科患者不断接受更好的治疗，但对于银屑病患者，改善医患沟通以改善患者管理的方法研究甚少。本研究旨在探讨基于云的银屑病医患互动管理的可行性和疗效。
由专业软件工程师创建基于云的平台，对单家医院的银屑病患者进行教育和管理，患者和研究人员在该平台上共享数据。共有 79 例银屑病患者纳入本研究，随机分为对照组（n=39）和干预组（n=40）。对照组患者给予银屑病护理手册，并进行常规随访。干预组患者使用云平台进行管理，管理方式与对照组相同。采用银屑病面积严重程度指数（PASI）、焦虑自评量表（SAS）、皮肤病生活质量指数（DLQI）和症状自评量表-90 修订版（SCL-90-R）进行评估。
基于云的医患互动管理可改善银屑病患者的临床症状，减轻焦虑程度，改善其身心健康。干预组患者对银屑病治疗的认识得到提高，与医务人员的关系得到改善，治疗依从性提高。
基于云的医患互动管理可改善银屑病患者的心理健康和生活质量，使患者更有效地管理疾病。
