J Am Pharm Assoc (2003). 2019 Mar-Apr;59(2S):S86-S95.e1. doi: 10.1016/j.japh.2018.12.014. Epub 2019 Feb 8.
To develop and test the usability and feasibility of a customizable mobile application (app) designed to help educate patients about their oral anticancer medications (OAMs) and regimens.
Outpatient cancer center and oncology pharmacy for urban, Midwestern academic health system.
Clinically-supervised educational intervention to support patients learning about OAMs.
With input from patient partners, our interdisciplinary team designed the first known tablet-based educational app that can interface with a patient's electronic medical record. The app is based on learning style and adherence theories and is customizable for individually prescribed OAMs. The app can accommodate multiple learning styles through text at 6th-grade reading level, pictures, animations, and audio voiceovers. Functionalities include interactive educational modules on 11 OAMs and case-based patient stories on common barriers to OAM adherence.
Early phase testing provided the opportunity to observe the user interface with the app and app functionality. Data were summarized descriptively from observations and comments of patient subjects.
Thirty patient subjects provided input-19 in phase 1 usability testing and 11 in phase 2 feasibility testing. Comments provided by patient subjects during usability testing were largely positive. Responses included self-identification with patient stories, usefulness of drug information, preferences for text messages, and app limitations (e.g., perceived generational digital divide in technology use and potential patient inability to receive text messages). Using their feedback, modifications were made to the prototype app. Responses in feasibility testing demonstrated the app's usefulness across a wide range of ages. Highest opinion ratings on app usefulness were stated by patients who were newer to OAM therapy.
User feedback suggests the potential benefit of the app as a tool to help patients with cancer, particularly after the first months for those starting new OAM regimens. Processes and lessons learned are transferable to other settings.
开发并测试一款可定制的移动应用程序（app），旨在帮助患者了解其口服抗癌药物（OAMs）和方案，以评估其可用性和可行性。
位于中西部城市学术医疗系统的一家门诊癌症中心和肿瘤药房。
通过临床监督的教育干预来支持患者学习 OAMs。
在患者伙伴的参与下，我们的跨学科团队设计了第一个基于平板电脑的教育应用程序，该程序可以与患者的电子病历接口。该应用程序基于学习风格和依从性理论，并可针对个体处方的 OAMs 进行定制。该应用程序可以通过 6 年级阅读水平的文本、图片、动画和音频旁白来适应多种学习风格。功能包括 11 种 OAMs 的互动教育模块和常见 OAM 依从性障碍的案例患者故事。
早期阶段测试提供了观察应用程序用户界面和应用程序功能的机会。数据是通过对患者受试者的观察和评论进行描述性总结得出的。
30 名患者受试者提供了输入——19 名在第 1 阶段的可用性测试中，11 名在第 2 阶段的可行性测试中。患者受试者在可用性测试中的评论大多是积极的。回应包括对患者故事的自我认同、药物信息的有用性、对短信的偏好，以及应用程序的局限性（例如，在技术使用方面存在代际数字鸿沟，以及患者可能无法接收短信的潜在问题）。根据他们的反馈，对原型应用程序进行了修改。在可行性测试中的回应表明，该应用程序在广泛的年龄范围内都具有实用性。对应用程序有用性评价最高的是那些刚开始使用新 OAM 方案的患者。
用户反馈表明，该应用程序作为一种帮助癌症患者的工具具有潜在的益处，特别是在开始新 OAM 方案的最初几个月后。所学到的流程和经验教训可以转移到其他环境中。
