Kristjansdottir Olöf Birna, Børøsund Elin, Westeng Marianne, Ruland Cornelia, Stenberg Una, Zangi Heidi A, Stange Kurt, Mirkovic Jelena
Department for Digital Health Research, Division of Medicine, Oslo University Hospital, Oslo, Norway.
Norwegian National Advisory Unit on Learning and Mastery in Health, Oslo University Hospital, Oslo, Norway.
JMIR Form Res. 2020 Mar 4;4(3):e16831. doi: 10.2196/16831.
Supporting patient engagement and empowerment is increasingly seen as essential in providing person-centered health care to people with chronic illness. Mobile apps helping patients reflect on their concerns as preparation for consultations with their health care providers can have beneficial effects on the consultation quality. However, apps focusing on empowerment and personal strengths are still scarce.
This study aimed to (1) develop a mobile app to support patients with rheumatic diseases in reflecting on their strengths in preparation for consultations with health care providers and (2) explore patients' perceived usability of the app in a nonclinical test setting.
A prototype app was developed based on input from patients and health care providers, as reported in previous studies. The app was designed for use in self-management support settings aiming to promote awareness of strengths and to focus attention on strengths in the patient-health care provider dialogue. The features included in the prototype were as follows: (1) introduction to the topic of strengths, (2) list of examples of strengths to promote reflection and registration of own strengths, (3) summary of registered strengths, (4) value-based goal setting, (5) linking of strengths to goals, (6) summary of all registrations, and (7) options to share summary digitally or as a print version. In this study, the app was refined through a formative evaluation with patients and health care providers recruited from a specialized rheumatology hospital unit. Patients' perceptions of the app's usability were explored in a test setting with self-report measurements and semistructured interviews. The interviews were audiotaped, transcribed, and analyzed with directed content analysis. Data from questionnaires were analyzed with descriptive statistics.
Developmental and formative evaluation included 18 patients and 7 health care providers. The evaluation resulted in minor adjustments to the prototype but no major changes in features. The usability testing included 12 patients. All participants found the usability acceptable; the median score on the System Usability Scale was 86.3 (range 70-100). All reported that it was meaningful and relevant to use the app. Out of 12 participants, 9 (75%) reported becoming more aware of their own strengths by using the app; 1 (8%) disagreed and 2 (17%) provided a neutral response. The results on the goal-related feature were mixed, with half of the patients finding it useful to link strengths to concrete goals. A statistically significant positive change from pre- to postintervention was identified on measures of self-efficacy and negative emotions.
In this formative evaluation of a mobile app to promote patients' reflections on their strengths, patients perceived the app as meaningful and supporting awareness. The results suggest the usefulness of building in functionality to support use of strengths and goal attainment. Further studies on efficacy and usability in a clinical setting, including health care providers, are needed.
在为慢性病患者提供以患者为中心的医疗服务时,支持患者参与并赋予其权力日益被视为至关重要。帮助患者思考自身关切问题,为与医疗服务提供者的会诊做准备的移动应用程序,可能会对会诊质量产生有益影响。然而,专注于增强权能和个人优势的应用程序仍然稀缺。
本研究旨在(1)开发一款移动应用程序,以支持风湿病患者在为与医疗服务提供者的会诊做准备时思考自身优势,以及(2)在非临床测试环境中探索患者对该应用程序的感知可用性。
如先前研究报道,基于患者和医疗服务提供者的意见开发了一个原型应用程序。该应用程序设计用于自我管理支持环境,旨在提高对优势的认识,并在患者与医疗服务提供者的对话中关注优势。原型中包含的功能如下:(1)优势主题介绍;(2)优势示例列表,以促进对自身优势的思考和记录;(3)已记录优势的总结;(4)基于价值观的目标设定;(5)将优势与目标联系起来;(6)所有记录的总结;(7)以数字方式或打印版本分享总结的选项。在本研究中,通过对从一家专门的风湿病医院科室招募的患者和医疗服务提供者进行形成性评估,对该应用程序进行了完善。在测试环境中,通过自我报告测量和半结构化访谈探索了患者对该应用程序可用性的看法。访谈进行了录音、转录,并采用定向内容分析法进行分析。问卷数据采用描述性统计进行分析。
开发性和形成性评估包括18名患者和7名医疗服务提供者。评估对原型进行了一些小调整,但功能没有重大变化。可用性测试包括12名患者。所有参与者都认为该应用程序的可用性是可以接受的;系统可用性量表的中位数分数为86.3(范围70 - 100)。所有人都报告说使用该应用程序是有意义且相关的。在12名参与者中,9名(75%)报告通过使用该应用程序对自己的优势有了更多认识;1名(8%)不同意,2名(17%)给出了中立的回答。与目标相关功能的结果好坏参半,一半的患者认为将优势与具体目标联系起来很有用。在自我效能感和负面情绪测量方面,干预前到干预后有统计学上显著的积极变化。
在对一款促进患者思考自身优势的移动应用程序的形成性评估中,患者认为该应用程序有意义且有助于提高认识。结果表明,加入支持优势利用和目标达成的功能是有用的。需要在包括医疗服务提供者在内的临床环境中进一步研究其有效性和可用性。