Brummett Abram
Albert Gnaegi Center for Health Care Ethics, Saint Louis University, Saint Louis, MO, USA.
Theor Med Bioeth. 2019 Feb;40(1):43-61. doi: 10.1007/s11017-019-09480-1.
Douglas Diekema has argued that it is not the best interest standard, but the harm principle that serves as the moral basis for ethicists, clinicians, and the courts to trigger state intervention to limit parental authority in the clinic. Diekema claims the harm principle is especially effective in justifying state intervention in cases of religiously motivated medical neglect in pediatrics involving Jehovah's Witnesses and Christian Scientists. I argue that Diekema has not articulated a harm principle that is capable of justifying state intervention in these cases. Where disagreements over appropriate care are tethered to metaphysical disagreements (as they are for Jehovah's Witnesses and Christian Scientists), it is moral-metaphysical standards, rather than merely moral standards, that are needed to provide substantive guidance. I provide a discussion of Diekema's harm principle to the broader end of highlighting an inconsistency between the theory and practice of secular bioethics when overriding religiously based medical decisions. In a secular state, ethicists, clinicians, and the courts are purportedly neutral with respect to moral-metaphysical positions, especially regarding those claims considered to be religious. However, the practice of overriding religiously based parental requests requires doffing the mantle of neutrality. In the search for a meaningful standard by which to override religiously based parental requests in pediatrics, bioethicists cannot avoid some minimal metaphysical commitments. To resolve this inconsistency, bioethicists must either begin permitting religiously based requests, even at the cost of children's lives, or admit that at least some moral-metaphysical disputes can be rationally adjudicated.
道格拉斯·迪凯马认为,并非最佳利益标准,而是伤害原则才是伦理学家、临床医生和法院触发国家干预以限制临床中父母权威的道德基础。迪凯马声称,在涉及耶和华见证人和基督教科学派的儿科宗教动机医疗忽视案件中,伤害原则在为国家干预提供正当理由方面特别有效。我认为迪凯马并未阐明一种能够为这些案件中的国家干预提供正当理由的伤害原则。当关于适当治疗的分歧与形而上学分歧相关联时(就像耶和华见证人和基督教科学派的情况那样),需要的是道德形而上学标准,而不仅仅是道德标准,来提供实质性指导。我对迪凯马的伤害原则进行了讨论,以更广泛地凸显世俗生物伦理学在推翻基于宗教的医疗决策时理论与实践之间的不一致。在一个世俗国家,伦理学家、临床医生和法院据称在道德形而上学立场上是中立的,尤其是对于那些被视为宗教性的主张。然而,推翻基于宗教的父母请求的做法需要放弃中立的外衣。在寻找一个有意义的标准来推翻儿科中基于宗教的父母请求时,生物伦理学家无法避免一些最低限度的形而上学承诺。为了解决这种不一致,生物伦理学家要么开始允许基于宗教的请求,即使以儿童生命为代价,要么承认至少一些道德形而上学争端可以得到合理裁决。