Department of Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden.
Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.
Eur J Cancer Care (Engl). 2019 May;28(3):e13009. doi: 10.1111/ecc.13009. Epub 2019 Feb 12.
For patients diagnosed with hormone-receptor-positive breast cancer, endocrine therapy (ET) is usually prescribed to reduce recurrence and mortality rates. Despite the benefits, compliance with treatment varies. The aim of this study was to provide qualitative data about women's experiences with ET after breast cancer surgery.
Twenty-five women, treated with Tamoxifen after breast cancer surgery, were interviewed in seven focus groups. Six open-ended questions were used to explore their experiences. The interviews were recorded, transcribed verbatim and analysed using inductive content analysis.
The analysis resulted in three categories that described the women's experiences: the treatment "creates discomfort"; "promotes levels of management"; and "causes feelings of abandonment". Women's experiences of treatment could at first glance be seen as positive, as perceived protection, but after further analysis, a deeper meaning was identified: protection with reservation. When experiencing discomfort, the women tried to manage the situation, although the mode of management sometimes varied. The women reported that they needed support, but when the support did not appear, they felt as though they had been abandoned. Moreover, knowledge about side effects became an obstacle, as it could create fear of more severe symptoms. They also described that their disease was perceived by healthcare professionals as "cancer light".
The information needs to be customised specifically to each person.
对于被诊断患有激素受体阳性乳腺癌的患者，通常会开处内分泌治疗（ET）以降低复发和死亡率。尽管有这些好处，但治疗的依从性却各不相同。本研究旨在提供有关女性乳腺癌手术后接受 ET 治疗的经验的定性数据。
对 25 名在乳腺癌手术后接受他莫昔芬治疗的女性进行了 7 个焦点小组访谈。使用 6 个开放式问题来探讨她们的经验。采访被记录下来，逐字转录并进行归纳内容分析。
分析产生了三个类别，描述了女性的体验：治疗“引起不适”；“促进管理水平”；和“产生被抛弃的感觉”。女性对治疗的最初体验可能是积极的，因为这被视为一种保护，但经过进一步分析，确定了更深层次的含义：有保留的保护。当出现不适时，女性试图管理这种情况，尽管管理模式有时会有所不同。女性报告说她们需要支持，但当支持没有出现时，她们感觉自己被抛弃了。此外，对副作用的了解成为一个障碍，因为它可能会引起对更严重症状的恐惧。她们还描述说，医护人员认为她们的疾病是“轻症癌症”。
需要根据每个人的具体情况定制信息。
