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儿童听力损失:对父母及家庭生活的影响

Childhood hearing loss: Impact on parents and family life.

作者信息

Dammeyer Jesper, Hansen Anja Toft, Crowe Kathryn, Marschark Marc

机构信息

University of Copenhagen, Department of Psychology, Denmark.

University of Copenhagen, Department of Psychology, Denmark.

出版信息

Int J Pediatr Otorhinolaryngol. 2019 May;120:140-145. doi: 10.1016/j.ijporl.2019.02.027. Epub 2019 Feb 15.

Abstract

BACKGROUND

Studies investigating the impact of having a child with hearing loss on the lives of parents and families have shown divergent results. Where some studies have reported that childhood hearing loss is associated with parental mental health problems, such as depression and stress, other studies report no impact on parental mental health and/or wellbeing.

OBJECTIVE

The aim of this study was to examine the association between child-related variables-degree of hearing loss, additional disabilities, sign language abilities, cochlear implants (CI), externalizing and internalizing emotional and behavioral difficulties measured by the Strength and Difficulties Questionnaire (SDQ)-and parent-related variables-parents living together, parents' mental health, spouse activities without children, and parents' experience of the child as being a burden for the family.

METHOD

Data of 257 parents of children with hearing loss from a national survey were included.

RESULTS

Only 18% of the children with hearing loss did not live with both parents, a figure significantly lower than that of the general population. The child variables of degree of hearing loss, having a CI or not, and sign language ability were not significantly associated with any of the parent variables investigated. The child having a disability in addition to hearing loss was found to be significantly associated with the frequency of spouses engaging in activities without children and reports that the child was a burden for the family. Both higher externalizing and internalizing scores on the SDQ were significantly associated with parental mental health problems, frequency of spouse activities without children, and the degree to which the child's difficulties were experienced as a burden for the family.

CONCLUSION

Children's hearing loss, per se, was found not to be significantly related to several key parent and family variables. However, children having additional disabilities and behavioral and emotional difficulties were significant with parent and family variables. This study thus underlines the need for further studies concerning relationships among factors related to childhood hearing loss and various family factors in order to better understand their impact on child development and family life.

摘要

背景

关于孩子听力损失对父母及家庭生活影响的研究结果存在分歧。一些研究报告称儿童听力损失与父母心理健康问题有关,如抑郁和压力,而其他研究则报告对父母心理健康和/或幸福感没有影响。

目的

本研究旨在探讨与孩子相关的变量(听力损失程度、其他残疾情况、手语能力、人工耳蜗植入、通过优势与困难问卷(SDQ)测量的外化和内化情绪及行为困难)与与父母相关的变量(父母共同居住情况、父母心理健康、无子女时配偶的活动、父母认为孩子是家庭负担的感受)之间的关联。

方法

纳入了一项全国性调查中257名听力损失儿童的父母的数据。

结果

只有18%的听力损失儿童并非与父母双方共同生活,这一比例显著低于普通人群。听力损失程度、是否植入人工耳蜗以及手语能力等孩子相关变量与所调查的任何父母相关变量均无显著关联。除听力损失外还有其他残疾的孩子与配偶无子女时参与活动的频率以及孩子被认为是家庭负担的报告显著相关。SDQ中外化和内化得分较高均与父母心理健康问题、配偶无子女时活动的频率以及孩子的困难被视为家庭负担的程度显著相关。

结论

研究发现,儿童听力损失本身与几个关键的父母及家庭变量没有显著关系。然而,有其他残疾以及存在行为和情绪困难的儿童与父母及家庭变量存在显著关联。因此,本研究强调需要进一步研究与儿童听力损失相关的因素和各种家庭因素之间的关系,以便更好地理解它们对儿童发展和家庭生活的影响。

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