Mutumba Massy, Mugerwa Henry, Musiime Victor, Gautam Anudeeta, Nakyambadde Hellen, Matama Christine, Stephenson Rob
1 Department of Health Behavior and Biological Sciences, University of Michigan, Ann Arbor, MI, USA.
J Int Assoc Provid AIDS Care. 2019 Jan-Dec;18:2325958218823246. doi: 10.1177/2325958218823246.
The heightened vulnerability of adolescents to poor HIV care outcomes underscores the need for interventions that create and promote HIV self-management behavioral skills. Adolescents living with HIV (ALHIV) experience a complex array of physical, emotional, and social challenges that constrain their self-care, but the majority of existing psychosocial programs focus primarily on medication adherence. Understanding adolescents' self-care needs, challenges, and preferences is necessary for developing effective culturally relevant interventions. The involvement of caregivers and stakeholders is also critical to realizing positive self-care outcomes. This article presents the findings from focus group discussions with ALHIV, caregivers, and healthcare providers on self-care. The data were collected as part of formative research in the development of a self-management intervention for Ugandan ALHIV. Participants' discussions on self-care strategies and intervention approaches provide valuable insights to guide the development of interventions to promote positive HIV care outcomes among Ugandan ALHIV.
青少年在获得不佳的艾滋病护理结果方面的更高脆弱性凸显了开展干预措施以培养和促进艾滋病自我管理行为技能的必要性。感染艾滋病病毒的青少年（ALHIV）面临一系列复杂的身体、情感和社会挑战，这些挑战限制了他们的自我护理，但现有的大多数心理社会项目主要侧重于药物依从性。了解青少年的自我护理需求、挑战和偏好对于制定有效的、具有文化相关性的干预措施至关重要。照顾者和利益相关者的参与对于实现积极的自我护理结果也至关重要。本文介绍了与感染艾滋病病毒的青少年、照顾者和医疗服务提供者就自我护理进行焦点小组讨论的结果。这些数据是在为乌干达感染艾滋病病毒的青少年开发自我管理干预措施的形成性研究过程中收集的。参与者关于自我护理策略和干预方法的讨论为指导制定干预措施提供了宝贵见解，以促进乌干达感染艾滋病病毒的青少年获得积极的艾滋病护理结果。
