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面向消费者的数据、信息和工具:数字时代的健康自我管理。

Consumer-Facing Data, Information, And Tools: Self-Management Of Health In The Digital Age.

机构信息

Karandeep Singh (

Sean R. Meyer is a PhD student in design science at the University of Michigan.

出版信息

Health Aff (Millwood). 2019 Mar;38(3):352-358. doi: 10.1377/hlthaff.2018.05404.

Abstract

Consumers have greater access to data, information, and tools to support the management of their health than ever before. While the sheer quantity of these resources has increased exponentially over the past decade, the accuracy of consumer-facing resources is variable, and the value to the individual consumer remains uncertain. In general, the quality of these resources has improved, mostly because of improvements in web and mobile technologies and efforts to restructure health care delivery to be more patient centered. We describe the major initiatives that have led to consumers' increased access to both their own health data and performance data for health care providers and hospitals. We explore how search engines and crowdsourced review websites help and hinder the dissemination of medically accurate information. We highlight emerging examples of websites and apps that enable consumers to make medical decisions more in concert with their preferences. We conclude by describing key limitations of consumer-facing resources and making recommendations for how they may best be curated and regulated.

摘要

消费者比以往任何时候都更容易获得数据、信息和工具来管理自己的健康。尽管过去十年中这些资源的数量呈指数级增长,但面向消费者的资源的准确性各不相同,对个体消费者的价值仍然不确定。总的来说,这些资源的质量有所提高,这主要是因为网络和移动技术的改进以及努力使医疗保健服务更加以患者为中心。我们描述了导致消费者增加对自己健康数据和医疗服务提供者及医院绩效数据的访问的主要举措。我们探讨了搜索引擎和众包评论网站如何帮助和阻碍医学准确信息的传播。我们重点介绍了一些新兴的网站和应用程序的例子,这些网站和应用程序使消费者能够根据自己的喜好更协调地做出医疗决策。最后,我们描述了面向消费者的资源的主要限制,并就如何最好地策划和监管这些资源提出了建议。

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