1 La Trobe University, Australia.
2 Deakin University, Australia.
Health Inf Manag. 2018 Sep;47(3):106-115. doi: 10.1177/1833358317712200. Epub 2017 Jun 7.
Low health literacy, low levels of positive belief and privacy and security concerns have been identified as a significant barrier to personal electronic health record uptake and use. An important tool for overcoming these barriers is the consumer-facing information which accompanies the system. My Health Record (MyHR) is the Australian national e-health record system, for which a large suite of online resources exists to facilitate consumer registration and use. This study uses a number of different measures of health resource quality to assess the MyHR online consumer-facing information and identify any gaps or areas for improvement.
To analyse the quality and content of the online consumer-facing resources which support the uptake and use of MyHR.
Australian information resources aimed at healthcare consumers about the MyHR were included in this study. A comprehensive search using Internet search engines was conducted to locate all online consumer-facing resources about MyHR from both government and non-government sources. Readability (measured by Flesch-Kincaid grade level), year of publication/review, publishing organisation type, presentation style, linked websites, target audience, and themes were identified as important measures of health information quality, and these were recorded and reported on for each resource.
Eighty resources met the inclusion criteria. The mean Flesch-Kincaid grade level was 11.8. Most resources were created by Australian government sources ( n = 55), and the most common target audience was the general public ( n = 65). Registration ( n = 51), privacy/security ( n = 49), and benefits of use ( n = 46) were the most common resource themes.
The authors identified a number of gaps and areas for improvement in the provision of consumer-facing information about MyHR. Readability is too high for the general Australian population, and there are few translated resources, which means that the information provided does not cater to people with low literacy levels, communication disability, and/or difficulties in understanding written English. The target audiences for resources do not reflect priority groups that were identified during the MyHR development processes. There are also gaps in information provision about how consumers can use MyHR as a tool to meaningfully engage with health professionals and services to support their own person-centred care.
低健康素养、低正面信念水平以及对隐私和安全的担忧已被确定为个人电子健康记录采用和使用的重大障碍。克服这些障碍的一个重要工具是面向消费者的系统伴随信息。我的健康记录（MyHR）是澳大利亚国家电子健康记录系统，为此存在大量在线资源，以方便消费者注册和使用。本研究使用了多种不同的健康资源质量措施来评估 MyHR 的在线面向消费者的信息，并确定任何差距或改进领域。
分析支持 MyHR 采用和使用的在线面向消费者资源的质量和内容。
本研究纳入了针对医疗保健消费者的澳大利亚 MyHR 在线信息资源。使用互联网搜索引擎进行了全面搜索，以从政府和非政府来源定位所有关于 MyHR 的在线面向消费者资源。可阅读性（用 Flesch-Kincaid 阅读水平衡量）、出版/审查年份、出版组织类型、演示风格、链接网站、目标受众和主题被确定为健康信息质量的重要衡量标准，并记录和报告了每个资源的这些标准。
80 项资源符合纳入标准。平均 Flesch-Kincaid 阅读水平为 11.8。大多数资源由澳大利亚政府来源创建（n = 55），最常见的目标受众是公众（n = 65）。注册（n = 51）、隐私/安全（n = 49）和使用益处（n = 46）是最常见的资源主题。
作者在提供有关 MyHR 的面向消费者信息方面发现了一些差距和改进领域。可阅读性对于澳大利亚普通民众来说太高，并且很少有翻译资源，这意味着提供的信息不能满足低识字水平、沟通障碍和/或难以理解书面英语的人群的需求。资源的目标受众并未反映在 MyHR 开发过程中确定的优先群体。关于消费者如何将 MyHR 用作与卫生专业人员和服务进行有意义互动以支持他们以人为本的护理的工具的信息提供也存在差距。
