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诊断为癫痫的儿童的母亲生活质量的相关因素。

Correlates of quality of life in mothers of children with diagnosed epilepsy.

机构信息

Ben-Gurion University of the Negev, The Spitzer Department of Social Work, Beer-Sheva 841050, Israel.

Soroka Medical Center, Head Nurse Manager, Beer-Sheva 841050, Israel.

出版信息

Epilepsy Behav. 2019 Apr;93:80-86. doi: 10.1016/j.yebeh.2019.01.039. Epub 2019 Mar 1.

Abstract

Contrary to a plethora of studies on the quality of life (QoL) of parents caring for children with chronic conditions, information regarding parents of children with epilepsy remains limited. The main purpose of the current study was to explore associations between children's biomedical characteristics, mothers' sociodemographic characteristics, mothers' situational factors, and QoL among mothers of children with epilepsy. One hundred and fifty mothers of children with epilepsy completed valid and reliable measures. The study was conducted at a large outpatient clinic for children with epilepsy in a central hospital in southern Israel. Sense of mastery and optimism emerged as significant predictors of all four domains of QoL; self-rated health (SRH) and mothers' socioeconomic status were significant predictors of three QoL domains; mothers' sleeping disturbances and children's behavioral problems predicted one QoL component. These results highlight the pivotal role that mastery and optimism play in securing the QoL of mothers caring for children with epilepsy. Moreover, mother's socioeconomic status and SRH should also be screened to deal with possible socioeconomic deprivation. In addition, health professionals should screen mothers and children for sleeping disturbances, and provide information about sleep hygiene. Psychosocial interventions need to be developed and offered to parents, in an attempt to address the social and behavior problems of children with epilepsy.

摘要

与大量研究父母照顾慢性病儿童的生活质量(QoL)相反,关于癫痫儿童父母的信息仍然有限。本研究的主要目的是探讨儿童生物医学特征、母亲社会人口统计学特征、母亲情境因素与癫痫儿童母亲 QoL 之间的关联。150 名癫痫儿童的母亲完成了有效和可靠的测量。该研究在以色列南部一家大型儿童医院的癫痫门诊进行。掌握感和乐观主义是 QoL 所有四个领域的重要预测因素;自我评估健康(SRH)和母亲的社会经济地位是三个 QoL 领域的重要预测因素;母亲的睡眠障碍和孩子的行为问题预测了一个 QoL 成分。这些结果强调了掌握感和乐观主义在确保照顾癫痫儿童的母亲的生活质量方面的关键作用。此外,还应筛查母亲的社会经济地位和 SRH,以解决可能的社会经济剥夺问题。此外,卫生专业人员应筛查母亲和儿童的睡眠障碍,并提供有关睡眠卫生的信息。需要制定和提供心理社会干预措施,以解决癫痫儿童的社会和行为问题。

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