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英国失聪儿童家长对自闭症和失聪的认知

Parental Conceptualizations of Autism and Deafness in British Deaf Children.

作者信息

Young Alys, Ferguson-Coleman Emma, Wright Barry, Le Couteur Ann

机构信息

School of Health Sciences, University of Manchester.

Department of Health Sciences, University of York.

出版信息

J Deaf Stud Deaf Educ. 2019 Jul 1;24(3):280-288. doi: 10.1093/deafed/enz002.

Abstract

The co-occurrence of childhood deafness and autism raises complex challenges for diagnosis and family support. In this article, we explore with hearing and Deaf parents their observations of the interaction between deafness and autism and identify how the intersections of deafness and autism are conceptualized in everyday life. Eight parents participated (two of whom were Deaf BSL users) in semi-structured interviews in either BSL or spoken English. Data analysis was underpinned by a phenomenological approach in the hermeneutic tradition. Findings are discussed in terms of parents' perceptions of the relevance of deafness to their understanding of autism for their particular child, the effects of autism on sign and spoken language development and the relationship between deafness and autism in terms of their own and others' attributions of their children's characteristics. The significance of the findings for parental contributions' to diagnostic assessment and the tailoring of family support are considered.

摘要

儿童期耳聋与自闭症并存给诊断和家庭支持带来了复杂的挑战。在本文中,我们与有听力的父母和失聪父母探讨了他们对耳聋与自闭症之间相互作用的观察,并确定了在日常生活中如何理解耳聋与自闭症的交叉情况。八位父母(其中两位是使用英国手语的失聪者)参与了以英国手语或英语口语进行的半结构化访谈。数据分析采用了解释学传统中的现象学方法。我们将根据父母对于耳聋与他们对自己孩子自闭症理解的相关性的看法、自闭症对手语和口语发展的影响,以及就他们自己和他人对孩子特征的归因而言耳聋与自闭症之间的关系来讨论研究结果。我们还考虑了这些研究结果对于父母在诊断评估中的贡献以及家庭支持的定制方面的意义。

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