Haywood Carol, Martinez Gabriela, Pyatak Elizabeth A, Carandang Kristine
Carol Haywood, PhD, OTR/L, is Postdoctoral Fellow in Health Services and Outcomes Research, Institute for Public Health and Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL. At the time of this work, she was a PhD Candidate, Mrs. T. H. Chan Division of Occupational Science and Occupational Therapy, University of Southern California, Los Angeles.
Gabriela Martinez, BA, is Patient Research Partner, Mrs. T. H. Chan Division of Occupational Science and Occupational Therapy, University of Southern California, Los Angeles.
Am J Occup Ther. 2019 Jan/Feb;73(1):7301090010p1-7301090010p9. doi: 10.5014/ajot.2019.731001.
Patients are experts on their own lives and the ways in which an illness, injury, or disability affects their health, activity, and quality of life. With its longstanding foundations in participatory action research, patient engagement has been gaining momentum across health care and related research. This momentum is supported by investments from several key research and federal policy-related organizations, including the Patient-Centered Outcomes Research Institute, National Institutes of Health, and Agency for Healthcare Research and Quality. Occupational therapy practitioners are uniquely positioned to champion patient collaborations. In this article, we discuss ways in which patient perspectives can be embraced in occupational therapy research, and we share insights from a research planning collaborative with adolescents and young adults that was led by occupational therapy researchers.
患者是自身生活以及疾病、损伤或残疾影响其健康、活动和生活质量方式的专家。基于参与式行动研究的长期基础，患者参与在医疗保健及相关研究领域正逐渐兴起。这一趋势得到了包括以患者为中心的结果研究所、国立卫生研究院和医疗保健研究与质量局在内的几个关键研究及联邦政策相关组织的投资支持。职业治疗从业者在倡导患者合作方面具有独特的地位。在本文中，我们讨论了在职业治疗研究中纳入患者观点的方法，并分享了由职业治疗研究人员牵头的与青少年和年轻人开展的研究规划合作中的见解。
