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亲属分享关于已入住养老院的痴呆症近亲的书面生活故事的经历:一项访谈研究。

Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study.

作者信息

Andersson Ewa Kazimiera, Dellkvist Helén, Bernow Johansson Ulrika, Skär Lisa

机构信息

Department of Health Blekinge Institute of Technology Karlskrona Sweden.

Karlskrona Municipality Karlskrona Sweden.

出版信息

Nurs Open. 2018 Oct 4;6(2):276-282. doi: 10.1002/nop2.208. eCollection 2019 Apr.

DOI:10.1002/nop2.208
PMID:30918679
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6419116/
Abstract

AIM

The aim of this study was to describe relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care.

DESIGN

An explorative descriptive qualitative design was used.

METHODS

The data were collected using semi-structured interviews with a purposeful sample of eight relatives and analyzed using a qualitative content analysis.

RESULTS

Results show that creating and sharing the life story of a close family member could help relatives handle grief and stress. It was perceived as an important, yet difficult, task to ensure that the close family member got good quality care. The creation of a meaningful life story takes time and requires cooperation with family members and other significant people.

摘要

目的

本研究旨在描述亲属与已入住养老院的患有痴呆症的亲密家庭成员分享书面生活故事的经历。

设计

采用探索性描述性定性设计。

方法

通过对八名亲属进行有目的抽样的半结构化访谈收集数据,并采用定性内容分析法进行分析。

结果

结果表明,创作并分享亲密家庭成员的生活故事有助于亲属应对悲伤和压力。确保亲密家庭成员获得高质量护理被视为一项重要但困难的任务。创作有意义的生活故事需要时间,并且需要与家庭成员和其他重要人物合作。

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本文引用的文献

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Patient centered care: We are definitely not there yet!以患者为中心的护理:我们肯定还未达到那种程度!
Geriatr Nurs. 2017 Jan-Feb;38(1):7-8. doi: 10.1016/j.gerinurse.2016.12.011. Epub 2017 Jan 19.
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The Association Between the Burden on Formal Caregivers and Behavioral and Psychological Symptoms of Dementia (BPSD) in Korean Elderly in Nursing Homes.韩国养老院老年人中正式照料者负担与痴呆行为和心理症状(BPSD)之间的关联
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How individuals with dementia in nursing homes maintain their dignity through life storytelling - a case study.养老院中患有痴呆症的个体如何通过讲述生活故事来维护尊严——一项案例研究。
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Stories about life narrated by people with Alzheimer's disease.由阿尔茨海默病患者讲述的关于生活的故事。
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Life review and life story books for people with mild to moderate dementia: a randomised controlled trial.轻度至中度痴呆患者的生活回顾和生活故事书籍:一项随机对照试验。
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Family caregivers' experiences of relinquishing the care of a person with dementia to a nursing home: insights from a meta-ethnographic study.家庭照顾者将痴呆症患者的护理工作转交给养老院的经历:一项元民族志研究的见解
Scand J Caring Sci. 2014 Jun;28(2):215-24. doi: 10.1111/scs.12046. Epub 2013 Apr 12.
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Spouse caregivers of people with advanced dementia in nursing homes: a longitudinal narrative study.养老院中晚期痴呆症患者的配偶照顾者:一项纵向叙事研究。
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