亲属分享关于已入住养老院的痴呆症近亲的书面生活故事的经历：一项访谈研究。
Relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care: An interview study.
作者信息
Andersson Ewa Kazimiera, Dellkvist Helén, Bernow Johansson Ulrika, Skär Lisa
机构信息
Department of Health Blekinge Institute of Technology Karlskrona Sweden.
Karlskrona Municipality Karlskrona Sweden.
出版信息
Nurs Open. 2018 Oct 4;6(2):276-282. doi: 10.1002/nop2.208. eCollection 2019 Apr.
Abstract
AIM
The aim of this study was to describe relatives' experiences of sharing a written life story about a close family member with dementia who has moved to residential care.
DESIGN
An explorative descriptive qualitative design was used.
METHODS
The data were collected using semi-structured interviews with a purposeful sample of eight relatives and analyzed using a qualitative content analysis.
RESULTS
Results show that creating and sharing the life story of a close family member could help relatives handle grief and stress. It was perceived as an important, yet difficult, task to ensure that the close family member got good quality care. The creation of a meaningful life story takes time and requires cooperation with family members and other significant people.
摘要
目的
本研究旨在描述亲属与已入住养老院的患有痴呆症的亲密家庭成员分享书面生活故事的经历。
设计
采用探索性描述性定性设计。
方法
通过对八名亲属进行有目的抽样的半结构化访谈收集数据，并采用定性内容分析法进行分析。
结果
结果表明，创作并分享亲密家庭成员的生活故事有助于亲属应对悲伤和压力。确保亲密家庭成员获得高质量护理被视为一项重要但困难的任务。创作有意义的生活故事需要时间，并且需要与家庭成员和其他重要人物合作。
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