Maastricht University, The Netherlands.
Health (London). 2019 Jul;23(4):458-477. doi: 10.1177/1363459319838315. Epub 2019 Mar 28.
Bipolar disorder is among the top 10 causes of disability worldwide. It is managed through a combination of medical and psychotherapeutic interventions, but finding an effective treatment is often a long process of trial-and-error, that medical professionals and people diagnosed with this condition engage upon. This article investigates how people diagnosed with bipolar disorder enact lay expertise about the treatment of this condition online. Using De Certeau's (1988) theory of everyday practices, three tactics are identified-complexity, uncertainty, and individualization-through which people diagnosed creatively adapt medical knowledge on bipolar disorder, to render their personal experiences and views on treatment more authoritative. It is suggested that through their technological features, which allow for the accumulation and refinement of the insights contributors share, blogs may function as digital repositories of patient experiences and may thus help facilitate collective processes of knowledge production. Online data were collected from two blogs, which were selected using the Google index as relevance indicator, and were analyzed through computer-mediated discourse analysis.
双相情感障碍是全球排名前十的致残原因之一。它通过医疗和心理治疗干预的结合来进行管理,但找到有效的治疗方法往往是一个漫长的试错过程,医疗专业人员和被诊断出患有这种疾病的人都会经历这个过程。本文探讨了被诊断出患有双相情感障碍的人如何在网上发挥他们的非专业知识来治疗这种疾病。本文运用德塞图(1988)的日常实践理论,确定了三种策略——复杂性、不确定性和个体化——通过这些策略,被诊断出的人创造性地调整了关于双相情感障碍的医学知识,使他们对治疗的个人经验和观点更具权威性。本文认为,通过博客的技术特征,即允许积累和完善贡献者分享的见解,博客可以作为患者体验的数字知识库,从而有助于促进知识生产的集体过程。在线数据是从两个博客中收集的,这些博客是使用谷歌索引作为相关性指标选择的,并通过计算机中介话语分析进行了分析。