Cederberg Jenny Thorsell, Weineland Sandra, Dahl JoAnne, Ljungman Gustaf
Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden,
Research and Development Center, Primary Health Care, Region Västra Götaland, Sweden.
J Pain Res. 2019 Mar 18;12:1017-1023. doi: 10.2147/JPR.S193164. eCollection 2019.
Pain is reported as one of the most common and burdensome symptoms for children with cancer. Pain catastrophizing is clearly related to pain intensity and disability. Catastrophizing in parents is associated with both child functioning and parent distress. The Pain Catastrophizing Scale for Parents (PCS-P) remains to be validated for parents of children with cancer. The aim of the study was to validate the Swedish version of the PCS-P for parents of children with cancer experiencing pain.
Parents of all children who were being treated for cancer in Sweden at the time of the study were invited to participate. Study material was sent out to the registered address. Internal consistency, test-retest reliability, and convergent validity were calculated, and factor analysis was conducted. Descriptive statistics was used to investigate the background data and norm values.
A total of 243 parents participated in the study. The results did not support the original three-factor structure of the PCS-P, but rather suggested that a two-factor structure best represented the data. The results showed excellent internal consistency (=0.93), excellent temporal stability (intraclass correlation coefficient =0.86) and moderate convergent validity (=0.57). The mean (SD) for the PCS-P in the sample was 28.3 (10.7). A statistically significant difference was found between mothers and fathers, where mothers reported a higher level of pain catastrophizing than fathers.
The psychometric properties of the PCS-P has now been supported in a sample of parents of children with cancer, and norm values are now available. The factor structure does, however, deserve more investigation.
疼痛被认为是癌症患儿最常见且负担最重的症状之一。疼痛灾难化明显与疼痛强度及功能障碍相关。父母的灾难化思维与孩子的功能状况及父母的痛苦均有关联。父母疼痛灾难化量表（PCS-P）尚待在癌症患儿父母中进行验证。本研究的目的是在经历疼痛的癌症患儿父母中验证瑞典语版的PCS-P。
邀请了在研究期间正在瑞典接受癌症治疗的所有患儿的父母参与。研究材料被寄往登记地址。计算了内部一致性、重测信度和收敛效度，并进行了因子分析。描述性统计用于调查背景数据和常模值。
共有243名父母参与了该研究。结果不支持PCS-P原有的三因素结构，而是表明两因素结构最能体现数据情况。结果显示出极佳的内部一致性（=0.93）、极佳的时间稳定性（组内相关系数=0.86）和中等的收敛效度（=0.57）。样本中PCS-P的均值（标准差）为28.3（10.7）。发现母亲和父亲之间存在统计学上的显著差异，母亲报告的疼痛灾难化水平高于父亲。
PCS-P的心理测量特性现已在癌症患儿父母样本中得到支持，且现已有常模值。然而，其因子结构值得进一步研究。
