National Research Council, Institute for Research on Population and Social Policies, via Palestro, 32 - 00185, Rome, Italy.
School of Nursing & Midwifery, Trinity College Dublin, Dublin, Ireland.
Eur J Pediatr. 2019 Jun;178(6):891-901. doi: 10.1007/s00431-019-03367-y. Epub 2019 Apr 2.
Children dependent on long-term ventilation need the planning, provision and monitoring of complex services generally provided at home by professionals belonging to different care settings. The collaboration among professionals improves the efficiency and the continuity of care especially when treating children with complex care needs. In this paper, the Unified Modelling Language (UML) has been adopted to detect the variety of the patterns of collaboration as well as to represent and compare the different processes of care across the 30 EU/EEA countries of the MOCHA project.Conclusion: Half of the analysed countries have a multidisciplinary team with different degrees of team composition, influencing organisational features such as the development of the personalised plan as well as the provision of preventive and curative services. This approach provides indications on the efficiency in performing and organising the delivery of care in terms of family involvement, interactions among professionals and availability of ICT. What is known: • Children with CCNs require a coordination of efforts before and after discharge in a continuum of care delivery dependent on the level of integrated care solutions adopted at country level. What is new: •The adoption of a business process method contributes to perform a cross-country analysis highlighting the variability of team composition and its influence on the delivery of care. • This approach provides indications on the efficiency in performing and organising the delivery of care in terms of family involvement, interactions among professionals and availability of ICT.
依赖长期通气的儿童需要规划、提供和监测通常由属于不同护理环境的专业人员在家中提供的复杂服务。专业人员之间的协作可提高护理的效率和连续性，特别是在治疗具有复杂护理需求的儿童时。在本文中，统一建模语言（UML）被采用来检测协作模式的多样性，以及代表和比较 MOCHA 项目的 30 个欧盟/欧洲经济区国家的不同护理过程。结论：一半的分析国家都有一个多学科团队，其团队组成程度不同，影响着组织特征，如个性化计划的制定以及预防和治疗服务的提供。这种方法在考虑家庭参与、专业人员之间的互动以及信息通信技术的可用性的情况下，为评估护理的提供和组织效率提供了依据。已知：•患有复杂护理需求的儿童需要在出院前和出院后进行协调，以提供连续的护理服务，这取决于国家层面所采用的综合护理解决方案的水平。新内容：•采用业务流程方法有助于进行跨国分析，突出团队组成的可变性及其对护理提供的影响。•这种方法在考虑家庭参与、专业人员之间的互动以及信息通信技术的可用性的情况下，为评估护理的提供和组织效率提供了依据。
