a School of Psychology, Queen's University Belfast , Belfast , Northern Ireland.
b Belfast Health and Social Care Trust , Belfast City Hospital , Belfast , Northern Ireland.
Psychol Health. 2019 Aug;34(8):901-921. doi: 10.1080/08870446.2019.1579910. Epub 2019 Apr 2.
Oesophageal cancer is an increasingly prevalent disease with a demanding post-curative treatment recovery period and sustained longer-term effects. Although post-curative treatment is a key transitionary period, the process of psychological adjustment for the individual is under-researched which limits the evidence base to inform supportive care. The aim of this study was to understand the process of adjustment for oesophageal cancer patients post-curative treatment, in particular the beliefs participants hold regarding their condition and how these are appraised against their experience. Serial interviews were undertaken with six oesophageal cancer patients who have recently completed curative treatment, at baseline and at 6-month follow-up using interpretative phenomenological analysis. The findings demonstrate an effortful process of adjustment, including recognising and accepting a changed self, fostering control beliefs over the course of the illness and physical sequelae, searching for meaning, developing illness coherence and moving away from self-blame. This study is the first to utilise a longitudinal qualitative design in oesophageal cancer, and provides an understanding of post-treatment adjustment over time for this clinical population through which to inform clinical practice and service development.
食管癌是一种发病率不断上升的疾病,患者在治愈后的恢复期需要进行高要求的治疗,且长期影响较大。虽然治愈后治疗是一个关键的过渡时期,但个体的心理调整过程研究不足,限制了支持性护理的证据基础。本研究旨在了解食管癌患者治愈后治疗的调整过程,特别是参与者对自己病情的信念,以及这些信念如何与他们的经历进行评估。采用解释性现象学分析方法,对最近完成治愈性治疗的 6 名食管癌患者在基线和 6 个月随访时进行了连续访谈。研究结果表明,这是一个费力的调整过程,包括认识和接受一个改变了的自我,在疾病和身体后遗症的过程中培养控制信念,寻找意义,发展疾病一致性,并避免自责。本研究首次在食管癌中采用纵向定性设计,通过了解该临床人群随时间推移的治疗后调整情况,为临床实践和服务发展提供了信息。