Larsen Malene Kaas, Schultz Helen, Mortensen Michael Bau, Birkelund Regner
Odense University Hospital, Odense, Denmark.
University of Southern Denmark, Odense, Denmark.
Glob Qual Nurs Res. 2020 Jun 29;7:2333393620935098. doi: 10.1177/2333393620935098. eCollection 2020 Jan-Dec.
Patients with curable esophageal cancer or cancer in the esophageal junction face several challenges during the course of their treatment because of the burden of uncertainty in their prognoses and complexity and side effects of the treatment. The aim of this study is to explore patient experiences with illness, treatment, and decision-making in the context of esophageal cancer. A qualitative approach using phenomenological-hermeneutical methodology was used. Data consisted of participant observations and interviews. We analyzed the data based on Ricoeur's theory of interpretation. The results show that patients with esophageal cancer are putting their ordinary lives on hold and experiencing the meal as a battleground during treatment. Patients strive to maintain autonomy, gain control, and take ownership. The results emphasize the need for a systematic approach to establish an ongoing dialogue with patients throughout the course of treatment.
可治愈的食管癌或食管交界癌患者在治疗过程中面临着诸多挑战，这是由于其预后存在不确定性，以及治疗的复杂性和副作用。本研究的目的是探讨食管癌患者在患病、治疗及决策方面的经历。采用了现象学 - 诠释学方法的质性研究方法。数据包括参与观察和访谈。我们基于利科的解释理论对数据进行了分析。结果表明，食管癌患者在治疗期间搁置了正常生活，将进食视为一场战斗。患者努力保持自主权、获得控制权并承担责任。结果强调在整个治疗过程中需要一种系统的方法来与患者建立持续对话。
