Health and Life Sciences, Northumbria University, Newcastle Upon Tyne, UK.
Academic Unit of Diabetes, Endocrinology and Metabolism, Department of Oncology & Metabolism, School of Medicine and Biomedical Sciences, University of Sheffield, Sheffield, UK.
Sociol Health Illn. 2019 Sep;41(7):1289-1304. doi: 10.1111/1467-9566.12906. Epub 2019 Apr 9.
We utilise Bury's (1982) biographical disruption to examine young people's experiences of type 1 diabetes. Our findings show that young adults adopted various 'subject positions' across different illness contexts. The subject positions deployed are intended to produce a particular kind of normal embodied identity unaffected by diabetes. First, participants concealed their illness in public spaces and challenged cultural stereotypes of diabetes to maintain a normal illness biography. Disruption was ever present and required careful negotiation to avoid exposure of illness in public. Young adults upheld a 'normal public presentation'. Second, they resisted the medical system's pressure to adhere to glucose targets asserting and maintaining a subject position of 'independent and autonomous young adults'. Here, disruption was transient and temporary, present in the clinic but not always beyond. It remained in the background for much of the time until it was reinforced by parents or at meal times. Third, young adults acquired a 'pragmatic subject position' with diabetes viewed as complex but manageable, no longer a target for resistance. Frank's (1995) 'narrative restitution' is adopted to describe the transition to life with 'normal' illness. We argue that illness experience was 'liminal' and reflected the subject positions adopted by young adults.
我们利用伯里（1982）的传记干扰来研究年轻人患 1 型糖尿病的经历。我们的研究结果表明，年轻人在不同的疾病环境中采用了各种“主体位置”。所采用的主体位置旨在产生一种不受糖尿病影响的特定正常体现身份。首先，参与者在公共场所隐瞒自己的病情，并挑战糖尿病的文化刻板印象，以保持正常的疾病传记。干扰始终存在，需要谨慎协商以避免在公共场合暴露病情。年轻人保持“正常的公众形象”。其次，他们抵制医疗系统对血糖目标的压力，主张并保持“独立和自主的年轻成年人”的主体地位。在这里，干扰是短暂的，只存在于诊所，并不总是存在。它在大部分时间都处于幕后，直到父母或用餐时间加强。第三，年轻人获得了一种“实用的主体位置”，将糖尿病视为复杂但可管理的疾病，不再是抵抗的目标。弗兰克（1995）的“叙事恢复”被用来描述向“正常”疾病生活的过渡。我们认为，疾病体验是“边缘”的，反映了年轻人所采用的主体位置。
