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低视力或失明人群的应对策略 - 一项探索性研究。

Coping strategy in persons with low vision or blindness - an exploratory study.

机构信息

Department of Ophthalmology, University College of Medical Sciences and Guru Teg Bahadur Hospital, Delhi - 95, India.

出版信息

Indian J Ophthalmol. 2019 May;67(5):669-676. doi: 10.4103/ijo.IJO_1655_18.

Abstract

PURPOSE

Coping strategies employed by people with visual disability can influence their quality of life (QoL). We aimed to assess coping in patients with low vision or blindness.

METHODS

In this descriptive cross sectional study, 60 patients (25-65 years) with <6/18 best-corrected vision (BCVA) in the better eye and vision loss since ≥6 months were recruited after the institutional ethics clearance and written informed consent. Age, gender, presence of other chronic illness, BCVA, coping strategies (Proactive Coping Inventory, Hindi version), and vision-related quality of life (VRQoL; Hindi version of IND-VFQ33) were recorded. Range, mean (standard deviation) for continuous and proportion for categorical variables. Pearson correlation looked at how coping varied with age and with VRQoL. The analysis of variance (ANOVA) and t-test compared coping scores across categorical variables. Statistical significance was taken at P < 0.05.

RESULTS

Sixty patients fulfilled inclusion criteria. There were 33 (55%) women; 25 (41.7%) had low vision, 5 (8.3%) had economic blindness, and 30 (50.0%) had social blindness; 27 (45.0%) had a co-morbid chronic illness. Total coping score was 142 ± 26.43 (maximum 217). VRQoL score (maximum 100) was 41.9 ± 15.98 for general functioning; 32.1 ± 12.15 for psychosocial impact, and 41.1 ± 17.30 for visual symptoms. Proactive coping, reflective coping, strategic planning, and preventive coping scores correlated positively with VRQoL in general functioning and psychosocial impact.

CONCLUSION

Positive coping strategies are associated with a better QoL. Ophthalmologists who evaluate visual disability should consider coping mechanisms that their patients employ and should refer them for counseling and training in more positive ways of coping.

摘要

目的

视障人士采用的应对策略会影响他们的生活质量(QoL)。我们旨在评估低视力或失明患者的应对方式。

方法

这是一项描述性的横断面研究,共纳入 60 名患者(年龄 25-65 岁),他们的最佳矫正视力(BCVA)<6/18,且健眼视力丧失≥6 个月。在机构伦理审查和书面知情同意后,纳入了这些患者。记录患者的年龄、性别、是否存在其他慢性疾病、BCVA、应对策略(积极应对量表,印地语版)和与视力相关的生活质量(印地语版 IND-VFQ33)。连续性变量用范围和均值(标准差)表示,分类变量用比例表示。采用 Pearson 相关分析评估应对方式与年龄和 VRQoL 的关系。采用方差分析(ANOVA)和 t 检验比较不同分类变量的应对评分。以 P < 0.05 为差异有统计学意义。

结果

共纳入 60 名患者,其中 33 名(55%)为女性;25 名(41.7%)为低视力患者,5 名(8.3%)为经济盲患者,30 名(50.0%)为社会盲患者;27 名(45.0%)患者合并慢性疾病。总应对评分 142 ± 26.43(最高分 217),VRQoL 评分(最高分 100)为 41.9 ± 15.98(一般功能),32.1 ± 12.15(心理社会影响),41.1 ± 17.30(视觉症状)。积极应对、反思应对、策略规划和预防应对评分与一般功能和心理社会影响的 VRQoL 呈正相关。

结论

积极的应对策略与更好的生活质量相关。评估视力障碍的眼科医生应考虑患者所采用的应对机制,并将其转介进行咨询和培训,以帮助其采用更积极的应对方式。

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