Haque Omar Sultan, Lenfest Yusuf, Peteet John R
Department of Global Health and Social Medicine, Harvard Medical School, Boston, MA, USA.
Department of Divinity, Harvard University, Cambridge, MA, USA.
Disabil Rehabil. 2020 Jun;42(11):1511-1517. doi: 10.1080/09638288.2019.1602674. Epub 2019 Apr 23.
With disabled patients, clinicians are often mechanistically oriented, limiting goals to bodily improvements of perceived deficits back to species-typical functioning. Psychological goals, when present at all, are often pessimistically narrow, or phenomenologically shallow. Recent research on fourth wave psychotherapies helps broaden clinical concepts of healing and treatment beyond mere deficit remediation, and helps match clinical goals with the richness of human flourishing and the layered complexity of the patient's evolving experience of meaning. This article draws from first-hand accounts of the experience of disability and adjustment to impairment, along with a synthesis of recent theoretical and experimental work in clinical psychology and psychotherapy, to present recommendations for more accurate and ethical notions of rehabilitation for clinical practice. We explain the clinical value of "flourishing": the psychological, social, cultural, existential, moral, spiritual and religious dimensions of the patient in the context of their dynamic narrative existence in meaningful relationship and ritual formation. This approach allows clinicians to personalize and humanize caregiving in line with human strengths, move beyond an aim of mere recovery, more accurately characterize perceived impairments, goals of care, and successful treatment outcomes. These more capacious and experientially-attuned clinical concepts and aims help the clinician accompany and empower patients by understanding what is at stake throughout the illness experience. This flourishing model helps to reimagine the clinician-patient relationship, and the methods and entire purpose of rehabilitation medicine, and clinical medicine more broadly. The condition of blindness is presented as an illustrative case.Implications for rehabilitationAmidst vast medical and technological advances in diagnosis and treatment of disabilities, modern health systems often still approach rehabilitation of disability via species-typical standards of bodily or mental homeostasis as the standard of sound health, without considering the perspectives and experiences of flourishing that are unique to the individual who is sufferingPsychological, social scientific, and religious traditions uniquely explore the inner experiences of individuals and their relationships, and can be used to help patients find individualized paths to recovery, healing, and flourishingFourth-wave psychotherapies, utilizing existential, humanistic, and spiritual/religious philosophies, have resources clinicians can use to help patients aim beyond mere recovery, and allow for the possibility of "ultrabilitation"Attention to the psychological, social, cultural, existential, moral, spiritual, and religious dimensions of the patient in the context of their dynamic existence can promote ultrabilitationDedicated focus on compassion, virtue, dignity, gratitude, contemplative wisdom, and transcendence can enable one to conceptualize flourishing in a way independent or complementary to bodily outcomes in recovery, and sometimes even when illness or disability persists.
对于残疾患者,临床医生往往倾向于机械主义,将目标局限于改善身体上所感知到的缺陷,使其恢复到物种典型功能状态。心理目标即便存在,也往往过于悲观狭隘,或者在现象学层面较为肤浅。最近关于第四波心理治疗的研究有助于拓宽治疗与康复的临床概念,使其超越单纯的缺陷修复,并有助于使临床目标与人类蓬勃发展的丰富内涵以及患者不断演变的意义体验的多层次复杂性相匹配。本文借鉴了对残疾经历和适应损伤的第一手描述,以及临床心理学和心理治疗领域近期理论与实验工作的综合成果,为临床实践中更准确且符合伦理的康复观念提出建议。我们阐释了“蓬勃发展”的临床价值:即患者在其动态叙事存在中,在有意义的关系和仪式形成的背景下,所具有的心理、社会、文化、存在、道德、精神和宗教维度。这种方法使临床医生能够根据人类优势将护理个性化和人性化,超越单纯康复的目标,更准确地描述所感知到的损伤、护理目标和成功的治疗结果。这些更具包容性且与体验相契合的临床概念和目标,有助于临床医生通过理解疾病经历中所涉及的利害关系来陪伴并赋能患者。这种蓬勃发展模型有助于重新构想医患关系,以及康复医学乃至更广泛意义上临床医学的方法和整体目的。以失明状况为例进行说明。
对康复的启示
在残疾诊断和治疗取得巨大医学和技术进步的背景下,现代医疗系统在处理残疾康复问题时,往往仍以身体或心理内稳态的物种典型标准作为健康的基准,而没有考虑到患者独特的蓬勃发展视角和体验。
心理学、社会科学和宗教传统独特地探索个体的内心体验及其关系,可用于帮助患者找到个性化的康复、治愈和蓬勃发展之路。
第四波心理治疗利用存在主义、人本主义和精神/宗教哲学,为临床医生提供了资源,可帮助患者超越单纯的康复目标,并允许实现“超康复”的可能性。
在患者动态存在的背景下,关注其心理、社会、文化、存在、道德、精神和宗教维度可促进超康复。
专注于同情、美德、尊严、感恩、沉思智慧和超越,可以使人以一种独立于或补充康复身体结果的方式来构想蓬勃发展,甚至有时在疾病或残疾持续存在的情况下也是如此。