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非裔美国护士对寻求和利用基因信息的看法探究

Exploration of African-American Nurses' Perceptions Toward Seeking and Utilizing Genetic Information.

作者信息

Coleman Bernice, Powell-Young Yolanda M, Martinez Bibiana, Wooters Jacqueline

机构信息

Heart Transplant and Mechanical Circulatory Assist Device Programs, Smidt Heart Institute, Cedars Sinai Medical Center, 8700 Beverly Blvd., Los Angeles, CA 90048.

College of Natural, Applied & Health Sciences, Kentucky State University, Frankfort, KY.

出版信息

J Natl Black Nurses Assoc. 2018 Dec;29(2):9-16.

PMID:31022334
Abstract

Advances in genetics and genomics have revolutionized the treatment possibilities for common diseases. Many treatment prospects demonstrate promise for addressing population health disparities. African-American nurses have a crucial role in facilitating the translation of scientific discovery into real-world practice among at-risk populations. The primary aims of this pilot study were to gain insight into the contextual perspectives of African-American nurses' views about factors that impede, support, and/or promote genetics and genomics knowledge in practice and participation in research. Data were obtained from a focused discussion of N = 6 registered nurses who attended the 2011 National Black Nurses Association (NBNA) annual conference. Utilizing a grounded theory approach, themes extrapolated from the focused discussion included the need for genetic and genomic education, distrust, cultural competency in care interactions, and the role of the NBNA in providing education. Suggestions for explanatory relationships are also presented.

摘要

遗传学和基因组学的进展彻底改变了常见疾病的治疗可能性。许多治疗前景显示出解决人群健康差异问题的希望。非裔美国护士在促进将科学发现转化为高危人群的实际应用方面发挥着关键作用。这项试点研究的主要目的是深入了解非裔美国护士对阻碍、支持和/或促进实践中遗传学和基因组学知识以及参与研究的因素的观点的背景情况。数据来自对6名注册护士的重点讨论,这些护士参加了2011年全国黑人护士协会(NBNA)年会。采用扎根理论方法,从重点讨论中推断出的主题包括对遗传和基因组教育的需求、不信任、护理互动中的文化能力以及NBNA在提供教育方面的作用。还提出了解释性关联的建议。

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引用本文的文献

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Nursing strategies to address health disparities in genomics-informed care: a scoping review.应对基因信息指导护理中健康差异的护理策略:一项范围综述
JBI Evid Synth. 2024 Nov 1;22(11):2267-2312. doi: 10.11124/JBIES-24-00009.
2
Current State of Genomics in Nursing: A Scoping Review of Healthcare Provider Oriented (Clinical and Educational) Outcomes (2012-2022).当前护理基因组学的状况:以医疗保健提供者为导向的(临床和教育)结果的范围综述(2012-2022 年)。
Genes (Basel). 2023 Oct 27;14(11):2013. doi: 10.3390/genes14112013.
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Equity in Genomics: A Brief Report on Cardiovascular Health Disparities in African American Adults.
基因组学中的公平性:非裔美国成年人心血管健康差异的简要报告。
J Cardiovasc Nurs. 2022;37(1):58-63. doi: 10.1097/JCN.0000000000000725.
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Exploring African American community perspectives about genomic medicine research: A literature review.探索非裔美国人社区对基因组医学研究的看法:一项文献综述。
SAGE Open Med. 2020 Jan 29;8:2050312120901740. doi: 10.1177/2050312120901740. eCollection 2020.