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Perspectives on Volunteer-Professional Collaboration in Palliative Care: A Qualitative Study Among Volunteers, Patients, Family Carers, and Health Care Professionals.志愿者与专业人员在姑息治疗中的合作视角:志愿者、患者、家属照顾者和卫生保健专业人员的定性研究。
J Pain Symptom Manage. 2019 Aug;58(2):198-207.e7. doi: 10.1016/j.jpainsymman.2019.04.016. Epub 2019 Apr 25.
3
Primary Care Physicians' Perceived Barriers to Nephrology Referral and Co-management of Patients with CKD: a Qualitative Study.基层医疗机构医生对慢性肾脏病患者转肾科就诊和共同管理的认知障碍:一项定性研究。
J Gen Intern Med. 2019 Jul;34(7):1228-1235. doi: 10.1007/s11606-019-04975-y. Epub 2019 Apr 16.
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Development of a hospice research culture through staff development, education and collaboration.通过员工发展、教育和合作来培养临终关怀研究文化。
BMJ Support Palliat Care. 2019 Sep;9(3):359-360. doi: 10.1136/bmjspcare-2018-001740. Epub 2019 Apr 16.
5
Health service utilisation during the last year of life: a prospective, longitudinal study of the pathways of patients with chronic kidney disease stages 3-5.生命最后一年的卫生服务利用情况:慢性肾脏病 3-5 期患者的前瞻性纵向研究路径。
BMC Palliat Care. 2018 Apr 5;17(1):57. doi: 10.1186/s12904-018-0310-8.
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Invited Commentary Should We Be Rationing Dialysis in South Africa in the 21 Century?特邀评论:21世纪我们应该在南非对透析进行配给吗?
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The development of hospital-based palliative care services in public hospitals in the Western Cape, South Africa.南非西开普省公立医院中基于医院的姑息治疗服务的发展情况。
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彻底重新思考南非的肾脏支持与姑息治疗

Radically Rethinking Renal Supportive and Palliative Care in South Africa.

作者信息

Wearne Nicola, Davidson Bianca, Motsohi Ts'epo, Mc Culloch Mignon, Krause Rene

机构信息

Division of Nephrology and Hypertension, Groote Schuur Hospital, Nephrology and Hypertension Research Unit, University of Cape Town, Cape Town, South Africa.

Division of Family Medicine in the School of Public Health and Family Medicine, University of Cape Town, Cape Town, South Africa.

出版信息

Kidney Int Rep. 2020 Dec 7;6(3):568-573. doi: 10.1016/j.ekir.2020.11.024. eCollection 2021 Mar.

DOI:10.1016/j.ekir.2020.11.024
PMID:33732973
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC7938062/
Abstract

The incidence of end-stage kidney disease (ESKD) is increasing worldwide; however, because of resource constraints, access to lifesaving kidney replacement therapy (KRT) remains limited in the state sector in South Africa. National guidelines mandate that only patients who are transplantable be accepted into state chronic dialysis programs. Once a patient is transplanted, there is an opportunity for a new patient to access a chronic dialysis slot. Given the resource scarcity, the South African Constitutional Court has ruled that rationing of dialysis is appropriate; however, this is not without cost both to patients and decision makers. Patients, both adults and pediatric, are often placed on a palliative care (PC) pathway not through choice but through circumstance. Renal supportive care (RSC) and PC involve an interdisciplinary approach to manage patients with ESKD to ensure that symptoms are managed optimally and to provide support during advanced disease. Innovative ways to address patient care at any age must be sought to ensure nonabandonment and adequate care with our limited resources.

摘要

终末期肾病(ESKD)的发病率在全球范围内呈上升趋势;然而,由于资源限制,在南非的国家部门,获得挽救生命的肾脏替代疗法(KRT)的机会仍然有限。国家指南规定,只有可移植的患者才能被纳入国家慢性透析项目。一旦患者接受了移植,就会有新的患者有机会获得慢性透析名额。鉴于资源稀缺,南非宪法法院裁定透析配给是合适的;然而,这对患者和决策者来说都并非没有代价。成人和儿童患者往往不是出于选择,而是由于环境因素而被置于姑息治疗(PC)路径上。肾脏支持性护理(RSC)和PC涉及一种跨学科方法,用于管理ESKD患者,以确保症状得到最佳管理,并在疾病晚期提供支持。必须寻求创新方法来解决任何年龄段患者的护理问题,以确保在资源有限的情况下不抛弃患者并提供充分护理。