Beluci Marli Luiz, Mondini Cleide Carolina da Silva Demoro, Trettene Armando Dos Santos, Dantas Rosana Aparecida Spadoti
Universidade de São Paulo, Escola de Enfermagem de Ribeirão Preto, Ribeirão Preto, SP, Brazil.
Universidade de São Paulo, Hospital de Reabilitação de Anomalias Craniofaciais, Bauru, SP, Brazil.
Rev Esc Enferm USP. 2019 Apr 29;53:e03432. doi: 10.1590/S1980-220X2017047603432.
To evaluate the correlation between measures of quality of life and burden in family caregivers of infants with cleft lip and palate and to analyze possible associations between quality of life and sociodemographic variables.
Exploratory, cross-sectional study conducted in hospital specialized in the treatment of craniofacial anomalies, with caregivers who answered the following data collection instruments: sociodemographic characterization form, World Health Organization Quality of Life - BREF questionnaire and the Burden Interview Scale. The statistical analysis was conducted using the Pearson's Correlation test, the Student's t-test and the ANOVA test with a level of significance of 0.05.
77 caregivers participated in the study. There was an inverse correlation between quality of life and burden in the Physical Health, Psychological, Social Relationships and Environment domains. There was a positive correlation between quality of life and family income in the Environment domain.
The greater the burden on the caregiver, the lower was their perception of quality of life. Caregivers with higher family income and greater level of education presented a better perception quality of life in the Environment domain.
评估唇腭裂患儿家庭照顾者的生活质量指标与负担之间的相关性，并分析生活质量与社会人口学变量之间可能存在的关联。
在一家专门治疗颅面畸形的医院开展探索性横断面研究，照顾者需填写以下数据收集工具：社会人口学特征表格、世界卫生组织生活质量简表（WHOQOL-BREF）以及负担访谈量表。采用Pearson相关检验、Student's t检验和方差分析进行统计分析，显著性水平为0.05。
77名照顾者参与了研究。在身体健康、心理、社会关系和环境领域，生活质量与负担之间存在负相关。在环境领域，生活质量与家庭收入之间存在正相关。
照顾者负担越重，其生活质量感知越低。家庭收入较高且教育程度较高的照顾者在环境领域对生活质量的感知较好。
