产前诊断口腔颌面部裂：揭示父母的体验。
Prenatal diagnosis of orofacial clefts: unveiling the parents' experience.
机构信息
Universidade de São Paulo, Bauru, SP, Brazil.
出版信息
Rev Paul Pediatr. 2023 Jan 20;41:e2022004. doi: 10.1590/1984-0462/2023/41/2022004. eCollection 2023.
OBJECTIVE
To understand the experience of parents regarding prenatal diagnosis of orofacial cleft in their children.
METHODS
Descriptive study with a qualitative approach, carried out in a Brazilian public tertiary hospital between January and March 2019. Parents who were accompanying their children during hospitalization for primary surgeries and who had received the diagnosis of malformation during pregnancy were included in this study. Data was collected through semi-structured interviews, which were audio-recorded and transcribed in full. To prepare the results, Content Analysis was used in the Thematic modality.
RESULTS
The sample had 17 participants: 16 mothers and one father. From the speeches, three categories were unveiled: dealing with the unknown, assimilating the diagnosis, and positive and negative implications of prenatal diagnosis.
CONCLUSIONS
We learned how complex and conflicting it was for parents to receive the diagnosis of malformation in their children, and that family and professional support was essential to the process of assimilation and coping. The findings point to the need for planning and implementing interventions, protocols and/or public policies aimed at assisting these parents in this period.
目的
了解父母在孩子患有口腔颌面部裂时对产前诊断的体验。
方法
这是一项描述性研究，采用定性方法，于 2019 年 1 月至 3 月在巴西一家公立三级医院进行。本研究纳入了在医院陪同孩子接受初次手术治疗且在怀孕期间已确诊为畸形的父母。通过半结构化访谈收集数据，访谈内容全部进行了录音和完整转录。采用主题模式的内容分析法来准备结果。
结果
该样本共有 17 名参与者：16 名母亲和 1 名父亲。从演讲中揭示了三个类别：处理未知、诊断同化和产前诊断的正负影响。
结论
我们了解到父母在孩子患有畸形时接受诊断是多么复杂和矛盾，家庭和专业支持对同化和应对过程至关重要。研究结果表明，需要规划和实施干预、协议和/或公共政策，以帮助这些父母度过这一时期。
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