Del Carmen Villanueva-Vilchis María, Almanza-Aranda Karen Esperanza, Gaitán-Cepeda Luis Alberto, Rangel-Salazar Rubén, de Los Ángeles Ramírez-Trujillo María, Del Carmen Aguilar-Díaz Fátima, de la Fuente-Hernández Javier
Department of Public Health, National School of Higher Studies, León Unit, National Autonomous University of Mexico, Leon 37684, Guanajuato, Mexico.
Department of Oral Pathology and Oral Medicine, Graduate and Research Division, Dental School, National Autonomous University of Mexico, Mexico City 04360, Mexico.
Healthcare (Basel). 2024 Aug 20;12(16):1659. doi: 10.3390/healthcare12161659.
Comprehensive treatment is crucial for patients with a cleft lip/palate. While studies have investigated its impact on children's quality of life, few have examined the effects on primary caregivers. The aim of the study was to compare the quality of life of caregivers of children with cleft lip/palate to a control group at the National School for Higher Studies, National Autonomous University of Mexico, Guanajuato. A cross-sectional study was conducted at a teaching dental clinic of the National School of Higher Studies, National Autonomous University of Mexico, Guanajuato, México, from May to December 2021 involving 140 caregivers (70 in each group). The WHOQoL Bref instrument assessed the quality of life. In addition to the descriptive analysis, a binary logistic regression analysis was carried out, taking dichotomized reported quality of life as the dependent variable. Among the caregivers, 88.6% were female ( > 0.05), and 45 (64.8%) from the study group reported poor quality of life ( < 0.05). A multivariate analysis indicated that caring for a child with cleft lip/palate raised the likelihood of poor quality of life ( < 0.05). The findings emphasize the need for comprehensive support for both patients and caregivers, as their well-being affects patient outcomes.
综合治疗对于唇腭裂患者至关重要。虽然已有研究调查了其对儿童生活质量的影响，但很少有研究考察对主要照料者的影响。本研究的目的是在墨西哥国立自治大学瓜纳华托高等研究学校，比较唇腭裂患儿照料者与对照组的生活质量。2021年5月至12月，在墨西哥瓜纳华托国立自治大学高等研究学校的教学牙科诊所进行了一项横断面研究，涉及140名照料者（每组70名）。采用世界卫生组织生活质量简表评估生活质量。除描述性分析外，还进行了二元逻辑回归分析，将二分后的报告生活质量作为因变量。在照料者中，88.6%为女性（>0.05），研究组中有45名（64.8%）报告生活质量较差（<0.05）。多变量分析表明，照料唇腭裂患儿会增加生活质量较差的可能性（<0.05）。研究结果强调，需要为患者和照料者提供全面支持，因为他们的幸福会影响患者的治疗结果。
