Department of Medical Informatics, Tohoku University Graduate School of Medicine.
Medical Informatics Center, Tohoku University Hospital.
Tohoku J Exp Med. 2019 May;248(1):19-25. doi: 10.1620/tjem.248.19.
On March 11, 2011, the Great East Japan Earthquake and ensuing tsunami that hit the northeastern coastal region of Japan caused about 18,000 casualties and destroyed numerous buildings. Additionally, many medical facilities were damaged and patient medical records lost. In order to maintain patient clinical information, a prefectural medical network system, the Miyagi Medical and Welfare Information Network (MMWIN), began providing backup data storage services in 2013 for hospitals, clinics, pharmacies, and other care facilities as a precaution for upcoming disasters. This system also facilitates the sharing of clinical information trans-institutionally as long as patients provide consent for this. In the present study, we examined the development of the MMWIN and its efficiency during the 5 years from its launch, and identified general problems to maintain such a backup system. At the end of 2018, the system contained backup data from more than 11 million patients with more than 420 million data items; more than 900 facilities were MMWIN users, and the number of patients consenting to sharing their clinical information reached 90,000. The use of the system has become widespread and the accumulating data should be utilized for research in the future. Maintaining a balance between income and cost is critical to make this project independent from local government subsidies.
2011 年 3 月 11 日，日本东北部沿海地区发生的东日本大地震及随后的海啸造成约 1.8 万人死亡，摧毁了大量建筑物。此外，许多医疗设施遭到破坏，患者的病历丢失。为了维护患者的临床信息，宫城县于 2013 年建立了一个地区医疗福利信息网络（MMWIN）系统，为医院、诊所、药店和其他医疗机构提供备份数据存储服务，以防备即将发生的灾害。只要患者同意，该系统还可以方便地在机构间共享临床信息。在本研究中，我们考察了该系统自启动以来 5 年的发展情况及其效率，并确定了维持这种备份系统的一般问题。截至 2018 年底，该系统包含了超过 1100 万名患者的备份数据，数据项超过 4.2 亿个；有超过 900 家机构使用该系统，同意共享其临床信息的患者人数达到了 9 万人。该系统的使用已经非常普及，积累的数据将来应该用于研究。在维持收支平衡方面，该项目需要摆脱对地方政府补贴的依赖，这一点至关重要。
