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让拉丁美洲公众参与健康研究:以心理健康为例

Involving the public in health research in Latin America: making the case for mental health.

作者信息

Troya M Isabela, Bartlam Bernadette, Chew-Graham Carolyn A

机构信息

Research Institute for Primary Care and Health Sciences, Keele University, Newcastle-under-Lyme, Staffordshire, United Kingdom.

出版信息

Rev Panam Salud Publica. 2018 May 4;42:e45. doi: 10.26633/RPSP.2018.45. eCollection 2018.

Abstract

Patient and Public Involvement and Engagement (PPIE) has been increasingly encouraged in health services and research over the last two decades. Particularly strong evidence has been presented with regard to the impact that PPIE has in certain research areas, such as mental health. Involving the public in mental health research has the potential to improve the quality of research and reduce the power imbalance between researchers and participants. However, limitations can be frequent and include tokenistic involvement and lack of infrastructure and support. Nevertheless, PPIE has the potential to impact mental health research in the Latin American context, where existing policies already support public involvement in health research and where the burden of mental disorders is significant. There are many lessons to learn from the evidence of PPIE in other regions. Latin America now has the opportunity to tackle one of today's most important issues: effective health care service delivery for all, based on evidence from comprehensive health research.

摘要

在过去二十年中,患者及公众参与和介入(PPIE)在卫生服务和研究中得到了越来越多的鼓励。关于PPIE在某些研究领域(如心理健康)所产生的影响,已经有了特别有力的证据。让公众参与心理健康研究有可能提高研究质量,并减少研究人员与参与者之间的权力不平衡。然而,限制情况经常出现,包括象征性参与以及缺乏基础设施和支持。尽管如此,PPIE在拉丁美洲背景下有可能对心理健康研究产生影响,在拉丁美洲,现有政策已经支持公众参与卫生研究,而且精神障碍负担很重。从其他地区PPIE的证据中有许多经验教训可供借鉴。拉丁美洲现在有机会解决当今最重要的问题之一:基于全面卫生研究的证据,为所有人提供有效的卫生保健服务。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5ac8/6386097/ada33c77a312/rpsp-42-e45-g001.jpg

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