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开放数据与公共卫生。

Open data and public health.

作者信息

D'Agostino Marcelo, Samuel Noah O, Sarol Maria Janina, de Cosio Federico G, Marti Myrna, Luo Tianyu, Brooks Ian, Espinal Marcos

机构信息

Pan American Health Organization, Washington, D.C., United States of America.

School of Information Sciences, University of Illinois at Urbana-Champaign, Champaign, Illinois, United States of America.

出版信息

Rev Panam Salud Publica. 2018 Jun 5;42:e66. doi: 10.26633/RPSP.2018.66. eCollection 2018.

Abstract

This article provides an overview of the intersection of open data and public health by first defining open government data, public health data, and other key concepts and relevant terminologies. There are differing perceptions on the urgency and importance of the openness of public health data. It has been established that disease outbreaks such as happened during the Ebola and Zika virus epidemics are indicative of the need for countries to develop a framework that will provide guidance for the management of public health data. Such a framework should ensure that data collected during public health emergencies are accessible to the appropriate authorities and in a form that can help with timely decision-making during such public health crises. In this article, we highlight available open data policies across many countries, including in the Americas. Our analysis shows that there are currently no articulated policy guidelines for the collection and management of public health data across many countries, especially in Latin America. We propose that any national data governance strategy must address potential benefits, possible risks, examples of data that could be shared, and the attributes of such data. Finally, we stress that the key concern in the Americas should be the development of regional frameworks for open data in public health that can be adopted or adapted by each country through appropriate national or subnational policies and strategies.

摘要

本文首先对开放政府数据、公共卫生数据以及其他关键概念和相关术语进行定义,从而概述开放数据与公共卫生的交叉领域。对于公共卫生数据开放的紧迫性和重要性,存在不同的看法。已经确定,诸如埃博拉和寨卡病毒疫情期间发生的疾病暴发表明,各国需要制定一个框架,为公共卫生数据的管理提供指导。这样一个框架应确保在公共卫生紧急情况期间收集的数据可供适当当局获取,并以有助于在此类公共卫生危机期间及时决策的形式提供。在本文中,我们重点介绍了包括美洲国家在内的许多国家现有的开放数据政策。我们的分析表明,目前许多国家,尤其是拉丁美洲国家,在公共卫生数据的收集和管理方面没有明确的政策指导方针。我们建议,任何国家数据治理战略都必须涉及潜在利益、可能风险、可共享数据的示例以及此类数据的属性。最后,我们强调,美洲地区的关键关注点应是制定公共卫生开放数据区域框架,各国可通过适当的国家或次国家政策及战略予以采用或调整。

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