Nascimento Silva Patrícia, Nascimento Silva Sarah
Programa de Pós-Graduação em Gestão & Organização do Conhecimento, Escola de Ciência da Informação, Universidade Federal de Minas Gerais, Belo Horizonte, Minas Gerais, Brazil.
Núcleo de Avaliação de Tecnologias em Saúde, Grupo de Pesquisa Clínica e Políticas Públicas em Doenças Infecciosas e Parasitárias, Instituto René Rachou, Fundação Oswaldo Cruz, Avenue Augusto de lima, 1715, Barro Preto, Belo Horizonte, MG, 30190-009, Brazil.
BMC Public Health. 2025 Jan 6;25(1):47. doi: 10.1186/s12889-024-21149-6.
Open government data (OGD) in the health sector consolidates transparency, access to information, and collaboration between the government and different sectors of society. It is an essential instrument for health systems and researchers to generate initiatives, drive innovations, and qualify decision-making, whether in health emergencies or supporting the creation of more effective public policies. This review aimed to identify OGD initiatives in healthcare and their possible applications.
A systematic search was conducted in the MEDLINE (PubMed), Web of Science, Scopus, and Scielo databases up to February 12, 2024. Eligibility criteria included original studies that addressed OGD initiatives in public health. Studies using open data to prepare other analyses, reviews, and opinion articles were excluded. The quality methodological of related studies was based on the JBI Critical Appraisal tool. Data extraction included the location of the application, description of the initiative/use of data, themes addressed, data quality, and respective evaluation tools.
Of the 3,176 records initially identified, six studies were included describing initiatives to make available datasets or portals that publish OGD in the healthcare area between 2020 and 2023. Most publications evaluated quality and usability requirements, with five related to the COVID-19 pandemics. There is significant heterogeneity in the data formats available, obtaining, on average, a 3-star rating in the Berners-Lee evaluation model. The availability of open data presents geographic differences, with regions being more developed than others in both the most comprehensive and the most regionalized studies.
Few studies using OGD in health were identified in the scientific literature. The heterogeneity of open data formats, the lack of standards, and the quality of the data point to limitations and the need for improvements to enable the use and reliable reuse of this data.
PROSPERO CRD42024498446.
卫生部门的开放政府数据（OGD）巩固了透明度、信息获取以及政府与社会不同部门之间的合作。无论是在卫生紧急情况中，还是在支持制定更有效的公共政策方面，它都是卫生系统和研究人员发起倡议、推动创新以及优化决策的重要工具。本综述旨在识别医疗保健领域的OGD倡议及其可能的应用。
截至2024年2月12日，在MEDLINE（PubMed）、科学网、Scopus和Scielo数据库中进行了系统检索。纳入标准包括涉及公共卫生领域OGD倡议的原始研究。排除使用开放数据进行其他分析、综述和观点文章的研究。相关研究的质量方法基于JBI批判性评价工具。数据提取包括应用地点、倡议描述/数据使用情况、涉及主题、数据质量以及相应的评估工具。
在最初识别的3176条记录中，纳入了六项研究，描述了2020年至2023年期间在医疗保健领域提供发布OGD的数据集或门户网站的倡议。大多数出版物评估了质量和可用性要求，其中五项与新冠疫情相关。可用数据格式存在显著异质性，在伯纳斯 - 李评估模型中平均获得三星评级。开放数据的可用性存在地理差异，在最全面和最区域化的研究中，某些地区比其他地区更发达。
在科学文献中识别出的使用卫生领域OGD的研究很少。开放数据格式的异质性、缺乏标准以及数据质量表明存在局限性，需要改进以实现这些数据的使用和可靠再利用。
PROSPERO CRD42024498446
