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以充分证据支持善意之举:如何提升糖尿病社交媒体的益处。

Supporting Good Intentions With Good Evidence: How to Increase the Benefits of Diabetes Social Media.

作者信息

Reidy Claire, Klonoff David C, Barnard-Kelly Katharine D

机构信息

1 Wessex CLAHRC, School of Health Sciences, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.

2 BHR Limited, Portsmouth, UK.

出版信息

J Diabetes Sci Technol. 2019 Sep;13(5):974-978. doi: 10.1177/1932296819850187. Epub 2019 May 16.

Abstract

Social media provides a platform for easily accessible, relevant health information and emotional and practical support at the touch of a button for millions of people with diabetes. Therein however lies a challenge. The accuracy and reliability of such information is often unknown and unverified, not all interactions are deemed supportive; practically or emotionally, and not all members of society have equitable access. Cyber bullying, requests for personal information and uninvited sharing are among the risks associated with social media, yet the use of online social media is increasing exponentially. Such reliance on web-based health information has given rise to concerns about patients' ability to accurately assess the credibility of online sources as well as the potential detrimental effect on personal well-being and patient-provider relations. In addition, there are rising digital disparities for particular subpopulations. Further, these concerns apply to where and how health care professionals should engage or refer patients to in terms of platforms of online support. There is little doubt regarding the popularity of social media, both within and outside of the health arena but there are also concerns. This article outlines five key areas associated with social media use in people living with diabetes and presents potential considerations moving forward. We focus on (1) social media as a platform for information and support; (2) social media interactions that are not supportive; (3) lessons from the DOC; (4) concerns about accuracy, reliability, and accessibility of information; and (5) differing priorities of health care professionals and patients.

摘要

社交媒体为数百万糖尿病患者提供了一个平台,只需轻轻一点,就能轻松获取相关的健康信息以及情感和实际支持。然而,其中也存在一个挑战。此类信息的准确性和可靠性往往未知且未经核实,并非所有互动都被视为具有支持性,无论是在实际层面还是情感层面,而且并非所有社会成员都能平等获取信息。网络欺凌、索要个人信息和未经邀请的分享等都是与社交媒体相关的风险,但在线社交媒体的使用却在呈指数级增长。对基于网络的健康信息的这种依赖引发了人们对患者准确评估在线信息来源可信度的能力以及对个人幸福感和医患关系的潜在不利影响的担忧。此外,特定亚人群的数字鸿沟也在加剧。此外,这些担忧还涉及医疗保健专业人员应该在哪些平台以及如何引导患者参与在线支持或向患者推荐这些平台的问题。毫无疑问,社交媒体在健康领域内外都很受欢迎,但也存在一些担忧。本文概述了与糖尿病患者使用社交媒体相关的五个关键领域,并提出了未来可能需要考虑的因素。我们关注以下几点:(1)社交媒体作为信息和支持的平台;(2)缺乏支持性的社交媒体互动;(3)来自糖尿病在线社区(DOC)的经验教训;(4)对信息准确性、可靠性和可及性的担忧;(5)医疗保健专业人员和患者不同的优先事项。

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