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通过合作与共识搭建桥梁:提高糖尿病患者、护理人员及医疗服务提供者对同伴支持及同伴支持社区的认知并扩大其应用。

Building Bridges Through Collaboration and Consensus: Expanding Awareness and Use of Peer Support and Peer Support Communities Among People With Diabetes, Caregivers, and Health Care Providers.

作者信息

Warshaw Hope, Edelman David

机构信息

1 Hope Warshaw Associates, LLC, Asheville, NC, USA.

2 Co-conveners for American Association of Diabetes Educators for AADE and Peer Support Communities Collaboration.

出版信息

J Diabetes Sci Technol. 2019 Mar;13(2):206-212. doi: 10.1177/1932296818807689. Epub 2018 Nov 4.

Abstract

Diabetes, regardless of type, is a complex disease. Successful management to achieve both short- and long-term health goals and outcomes is highly dependent on learning, mastery, and regular implementation and execution of self-care behaviors. The importance of a positive mental outlook and minimization of psychosocial barriers to care is increasingly identified as important in managing the whole person with diabetes and, as appropriate, the caregivers. Ongoing support from HCP and increasingly ongoing support from peers are critical elements of quality diabetes care. With the availability of virtually accessible technologies for social media and networking, the volume of peer support among people with diabetes and their caregivers has increased exponentially and will likely continue to do so. With the value of ongoing peer support recognized as an important element in diabetes health, a growing number of peer support communities and increasing engagement in these communities among some diabetes educators, the American Association of Diabetes Educators (AADE) embarked on an initiative to more formally work with diabetes peer support communities and their leaders. To initiate this effort AADE held and supported a consensus meeting in 2017. This article reviews the history and goals of this effort and details the meeting outcomes. It also discusses the collaborations completed since the initial meeting along with plans for the near future. This collaboration is unique and presents a model for similar endeavors in diabetes or other chronic diseases.

摘要

无论何种类型,糖尿病都是一种复杂的疾病。成功的管理以实现短期和长期的健康目标及成果,高度依赖于对自我护理行为的学习、掌握以及定期实施和执行。积极的精神面貌以及尽量减少护理中的社会心理障碍,在对糖尿病患者及适当情况下对其护理人员进行全面管理方面,日益被视为至关重要。医疗保健专业人员的持续支持以及同伴越来越多的持续支持,是优质糖尿病护理的关键要素。随着社交媒体和网络等几乎可随时获取的技术的出现,糖尿病患者及其护理人员之间的同伴支持数量呈指数级增长,而且可能会继续如此。由于持续的同伴支持的价值被认为是糖尿病健康的一个重要因素,越来越多的同伴支持社区以及一些糖尿病教育工作者对这些社区的参与度不断提高,美国糖尿病教育者协会(AADE)发起了一项倡议,以更正式地与糖尿病同伴支持社区及其领导者合作。为启动这项工作,AADE在2017年举办并支持了一次共识会议。本文回顾了这项工作的历史和目标,并详细介绍了会议成果。它还讨论了自首次会议以来完成的合作以及近期计划。这种合作是独一无二的,为糖尿病或其他慢性病的类似努力提供了一个模式。

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