Section of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, USA.
Section of Adolescent Medicine & Sports Medicine, Department of Pediatrics, Baylor College of Medicine, Texas Children's Hospital, Houston, TX, USA.
J Pediatr Nurs. 2020 Jan-Feb;50:121-127. doi: 10.1016/j.pedn.2019.04.028. Epub 2019 May 13.
The purpose of this study is to evaluate the relevancy and fit of a proposed group-based, peer-mentored intervention, based on the principles of Self-Determination Theory (SDT), to facilitate the development of health self-management skills needed to transition from pediatric to adult-based healthcare.
Individual in-depth interviews with 28 transition-age youth (TAY) ages 17-22 and 24 caregivers (parents) from Gastroenterology, Renal and Rheumatology clinical services assessed interests in and preferred content, timing of and format for an intervention to help youth build self-management skills. Descriptive statistics were used for short answer questions and rating scales. Thematic analysis was used to analyze transcripts.
90% of TAY and all caregivers thought the proposed group-based transition skills-building intervention was a good idea. TAY expressed wanting someone with lived experience to lead it and a desire to meet other youth with chronic conditions. All caregivers would want their TAY to participate if given the opportunity. Both TAY and caregivers voiced the importance of mental health topics as many TAY experienced anxiety or depression over managing their illness. Nearly 50% of TAY and caregivers thought parents should attend some or all group sessions, though TAY and caregivers within the same family did not always agree.
Findings establish the relevancy and fit of a peer-mentored intervention focused on skill development to successfully transition to adult healthcare.
The group intervention designed using a SDT framework may be particularly relevant as autonomy, competence, and relatedness undergo major developmental changes during adolescence.
本研究旨在评估基于自我决定理论（SDT）原则的拟议的基于小组、朋辈指导的干预措施的相关性和适宜性，以促进发展过渡到成人医疗保健所需的健康自我管理技能。
对来自胃肠病学、肾脏和风湿病学临床服务的 28 名 17-22 岁的过渡年龄青年（TAY）和 24 名照顾者（父母）进行了个体深入访谈，评估了对干预措施的兴趣以及对干预措施的内容、时间和格式的偏好，以帮助青年发展自我管理技能。简短答案问题和评分量表采用描述性统计。使用主题分析来分析转录本。
超过 90%的 TAY 和所有照顾者都认为拟议的基于小组的过渡技能培养干预措施是个好主意。TAY 表示希望由有经验的人来领导，并希望与患有慢性疾病的其他青年会面。如果有机会，所有照顾者都希望他们的 TAY 参加。TAY 和照顾者都强调了心理健康主题的重要性，因为许多 TAY 在管理他们的疾病时会感到焦虑或抑郁。近 50%的 TAY 和照顾者认为父母应该参加部分或全部小组会议，尽管 TAY 和同一家庭的照顾者并不总是意见一致。
研究结果证实了以技能发展为重点的朋辈指导干预措施与成功过渡到成人医疗保健的相关性和适宜性。
使用 SDT 框架设计的小组干预措施可能特别相关，因为自主性、能力和关联性在青少年时期会发生重大发展变化。
