Riobueno-Naylor Alexa, Romo Stephanie, Kazis Lewis, Wang Shirley, Lydon Martha, Nelson Judith, Fowler Laura, Drexler Alana, Kogosov Ann, Haile Haregnesh, Ryan Colleen M, Chang Philip, Warner Petra, Palmieri Tina L, Lee Austin F, Stoddard Frederick, Murphy J Michael, Sheridan Robert L
Department of Clinical Research, Shriners Hospitals for Children - Boston, Massachusetts.
Department of Psychiatry, Massachusetts General Hospital, Boston, Massachusetts.
J Burn Care Res. 2019 Oct 16;40(6):776-784. doi: 10.1093/jbcr/irz082.
The Burn Outcomes Questionnaire for children ages 5-18 years (BOQ5-18) is a widely used, reliable, and valid parent-reported outcome measure designed to assess children's recovery from burn injuries in 12 physical and psychosocial domains. This study evaluated the feasibility, acceptability, and usefulness of a feedback system that delivered BOQ and Pediatric Symptom Checklist (PSC-17; a widely used measure of psychosocial functioning) results to burn care clinicians prior to an outpatient appointment or a postoperative surgical encounter. The BOQ and the PSC-17 were administered to the parents of 147 children receiving outpatient or surgical care in two pediatric burn hospitals. Clinician and parent perceptions of the feedback system were evaluated using debriefing questionnaires. Over half of all patients were at-risk on at least one BOQ subscale, and risk on three or more BOQ domains was significantly associated with a higher likelihood of poor psychological scores on the PSC-17 (P < .001). Significant differences in BOQ scores were found between the two hospital sites on four BOQ subscales, three related to physical ability and one to psychosocial well-being. Parent ratings of the feedback system were positive, with 90% of parents in both settings agreeing that the BOQ tablet experience was easy and helpful. Clinician attitudes differed across the two settings with more positive clinician ratings of the system in the outpatient setting (P < .001). Clinician interviews revealed that the data was especially useful in bringing to light psychosocial aspects of functioning relevant to long-term recovery from burn injuries.
5至18岁儿童烧伤结局问卷（BOQ5 - 18）是一种广泛使用、可靠且有效的家长报告结局指标，旨在评估儿童烧伤后在12个身体和心理社会领域的恢复情况。本研究评估了一种反馈系统的可行性、可接受性和实用性，该系统在门诊预约或术后外科会诊前，将BOQ和儿童症状清单（PSC - 17；一种广泛使用的心理社会功能指标）的结果提供给烧伤护理临床医生。在两家儿科烧伤医院，对147名接受门诊或手术治疗的儿童的家长进行了BOQ和PSC - 17测评。使用汇报问卷评估临床医生和家长对反馈系统的看法。超过一半的患者在至少一个BOQ子量表上存在风险，且在三个或更多BOQ领域存在风险与PSC - 17心理得分较差的可能性显著相关（P <.001）。在两个医院站点之间，四个BOQ子量表的BOQ得分存在显著差异，其中三个与身体能力相关，一个与心理社会幸福感相关。家长对反馈系统的评价是积极的，在两种情况下，90%的家长都认为BOQ平板电脑体验简单且有帮助。两个环境下临床医生的态度有所不同，门诊环境中临床医生对该系统的评价更为积极（P <.001）。临床医生访谈显示，这些数据在揭示与烧伤长期恢复相关的心理社会功能方面特别有用。
