Yap Kwong Hsia, Warren Narelle, Reidpath Daniel D, Allotey Pascale
a Jeffrey Cheah School of Medicine and Health Sciences , Monash University Malaysia , Bandar Sunway , Malaysia.
b School of Social Sciences, Clayton Campus , Monash University , Melbourne , Australia.
Int J Qual Stud Health Well-being. 2019 Dec;14(1):1613875. doi: 10.1080/17482631.2019.1613875.
Stroke survivors report poorer self-rated health (SRH) compared to the general population but there is limited understanding on what contributes to SRH. This ethnographic study examined the individual and contextual factors that shape stroke survivors' SRH in a rural middle income country situated in South East Asia. Ethnographic methods which encompasses various data collection methods from different data sources were used in this study to describe the socio-cultural context of 16 stroke survivors living in a rural village. Within this context, the experiences of these participants were then interpreted in terms of what contributed to their perception of health and recovery, juxtaposed with objectively measure physical and cognitive states. : SRH reflected the post stroke adjustment of stroke survivors. Better SRH was influenced by good post-stroke adjustment that was achieved by a combination of physical functioning, cognitive functioning, emotional well-being and family support. Poorer SRH appear to reflect poor post-stroke adjustment regardless of the objective physical and cognitive states of the stroke survivors. It was also observed that cognitive deficits, though its presence was acknowledged by participants, were usually not taken into account when rating SRH. However, while physical functioning was perceived by participants to directly impact SRH, the presence of cognitive deficits (often in tandem with depressive symptoms) indirectly complicated the recovery of physical functions treasured by participants. Stroke survivors reporting poorer SRH warrant further attention and intervention from health practitioners supporting the longer-term needs of stroke survivors in similar settings.
与普通人群相比,中风幸存者报告的自评健康状况(SRH)较差,但对于影响SRH的因素了解有限。这项人种志研究考察了东南亚一个农村中等收入国家中影响中风幸存者SRH的个体和背景因素。本研究采用人种志方法,该方法涵盖了来自不同数据源的各种数据收集方法,以描述生活在一个乡村的16名中风幸存者的社会文化背景。在此背景下,这些参与者的经历随后根据对其健康和康复认知有贡献的因素进行解读,并与客观测量的身体和认知状态并列分析。:SRH反映了中风幸存者中风后的调整情况。较好的SRH受到中风后良好调整的影响,这种良好调整是通过身体功能、认知功能、情绪健康和家庭支持的综合作用实现的。较差的SRH似乎反映了中风后调整不佳,无论中风幸存者的客观身体和认知状态如何。还观察到,尽管参与者承认存在认知缺陷,但在评定SRH时通常不会将其考虑在内。然而,虽然参与者认为身体功能直接影响SRH,但认知缺陷(通常与抑郁症状同时出现)的存在间接使参与者珍视的身体功能恢复变得复杂。报告SRH较差的中风幸存者需要得到医疗从业者的进一步关注和干预,以满足类似环境中中风幸存者的长期需求。